Children and Youth with Special Health Care Needs

Current Projects

The Catalyst Center: Financing Care for Children and Youth with Special Health Care Needs is a cooperative agreement with the Maternal and Child Health Bureau of the Health Resources and Services Administration. Visit the Catalyst Center on this website for copies of the State-at-a-Glance Chartbook on Financing Care, information about the Family Opportunity Act, Mandated Benefits, Family Financial Hardship, Medicaid as a Second Language and other resource materials, 2005-present.

The MA Department of Social Services Health and Medical Services Project is designed to assist the Department of Social Services (DSS) with developing appropriate and feasible policies to address the healthcare needs of children in out-of-home placement. Under a subcontract with the Justice Resource Institute (Health), HDWG staff participated in the policy research and drafting of recommendations, 2007.

Completed Projects

Employee Benefits Study of Children with Special Health Care Needs, a subcontract with the MassGeneral Hospital for Children under a grant from the Maternal and Child Health Bureau of the Health Resources and Services Administration, 2001-2004.
Read more . . .

A Study of Access to Health Care for People with Disabilities Across the Life Span and the Spectrum of Disability, National Institute on Disability and Rehabilitation Research, 1999-2002.
Read more. . .

Subcontract with the Center for Health Care Strategies (CHCS) to help facilitate a workgroup of 12 Medicaid managed care organizations to improve the delivery of care to children with special health care needs under the Center’s Best Clinical and Administrative Practices program. See the CHCS’s Toolkit on Improving Managed Care for Children with Special Health Care Needs, 2001-2003.

Massachusetts Perinatal Provider HIV Survey, MA Department of Public Health, 10/01/2002 – 8/30/2003. Read more . . .

Disability in the Public Health Curriculum, Association of Schools of Public Health, 5/01/02 – 6/30/03. Read more . . .

The Massachusetts Department of Social Services: to conduct a study of the health care needs of children in foster care and the role of nurses within the Department in the context of changes anticipated as a result of managed care, 1997.