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DATA SOURCES

Where the data comes from: full sources and methods.

DATA SOURCES AND METHODS

DEMOGRAPHICS

ECONOMICS

CHILD HEALTH SERVICES

FACTORS INFLUENCING HEALTH INSURANCE COVERAGE

TITLE V PROGRAM

Child Population

The number of children in the state, and children as a percentage of the total state population in 2003-2004.

Source: Urban Institute and Kaiser Commission on Medicaid and the Uninsured, based on the Census Bureau’s March 2004 and 2005 Current Population Survey. Cited in Kaiser Family Foundation (2005). Population Distribution by Age, states (2003-2004), U.S. (2004). Retrieved July 6, 2006 from http://www.statehealthfacts.org/cgi-bin/healthfacts.

Race/Ethnicity

The percentage of children, by race/ethnicity in 2000.

Source: Derived from Census data by subtracting the population 18 years and older from the population of all ages, then dividing by the population of all ages, for each race/ethnicity. U.S. Census Bureau (2002). American FactFinder, Decennial Programs, Census 2000, Summary File 1 (SF 1), Table P4 Hispanic or Latino, and Not Hispanic or Latino by Race, Universe: Total Population and Table P6 Hispanic or Latino, and Not Hispanic or Latino by Race, Universe: Total Population 18 years and over. Retrieved July 6, 2006 from http://factfinder.census.gov.

Household

Among households with children, the percentage of households with one, two, or three or more adults, in 2001.

Source: Parent report in National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://www.cshcndata.org.

Urban/Rural

The percentage of the total population in the state living in urban areas (areas with 2,500 or more inhabitants) in 2000.

Source: U.S. Census Bureau as cited in U.S. Department of Education, Office of Special Education and Rehabilitative Services, Office of Special Education Programs, 25th Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act, 2003 Washington, D.C. Retrieved July 6, 2006 from http://www.ed.gov/about/reports/annual/osep/2003/index.html.

Special Health Care Needs

The percentage of children with special health care needs and the percentage of households, among households with children, that had one or more children with special health care needs in 2001.

Source: Parent report in National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/DataQuery/SurveyTopics.aspx.

Low Birth Weight

The percentage of all live births that are low birth weight (a weight less than 2500 grams at birth) in 2002.

Source: Centers for Disease Control and Prevention as cited in U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Child Health USA 2004, Percentage of Infants Born at Low Birth Weight, Women Receiving First Trimester Prenatal Care, and Births to Women Under 18, by State and Race of Mother: 2002. Rockville, Maryland: U.S. Department of Health and Human Services, 2004. Retrieved July 6, 2006 from http://www.mchb.hrsa.gov.

Special Education

Children served under the Individuals with Disabilities Education Act, Part B as a percentage of total public school enrollment in 2001-2002.

Source: The National Center for Education Statistics, Digest of Education Statistics (2003). Table 54. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and state or jurisdiction: Selected years, 1990-91 to 2001-02. Retrieved July 6, 2006 from http://nces.ed.gov/programs/digest/d03/tables/dt054.asp.

Income – Per Capita

1999 per capita income (average of aggregate income divided by total population of the area).

Source: U.S. Census Bureau (2002). American FactFinder, Decennial Programs, Census 2000, Summary File 3 (SF 3), Table P82 Per Capita Income in 1999 (dollars), Universe: Total Population. Retrieved July 6, 2006 from http://factfinder.census.gov.

Income – Children Below 200% FPL

The percentage of children living in households with incomes below 200% of the federal poverty level in 2001.

Source: Parent report in National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/DataQuery/SurveyTopics.aspx.

Unemployment

Seasonally adjusted unemployment rate for 2006.

Source: U.S. Bureau of Labor Statistics as cited by Kaiser Family Foundation (2006). Unemployment Rate (Seasonally Adjusted), 2006 Compared to 2005. Retrieved May 31, 2006 from http://www.statehealthfacts.org.

Financial Impact of Caregiving

The percentage of families who cut down on hours worked or stopped working altogether because of children’s health conditions or health needs.

Source: Parent report in National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/DataQuery/SurveyTopics.aspx.

Employer Size

The percent distribution of employers by the number of employees in the firm.

Source: U.S. Census Bureau (2003). Statistics of U.S. Businesses, 2003. Retrieved on July 11, 2006 from http://www.census.gov/csd/susb/susb03.htm.

Employer-Sponsored Health Insurance

The percentage of private-sector establishments (employers) that offer health insurance to employees, by number of employees in 2003.

Source: Agency for Healthcare Research and Quality, Center for Financing, Access and Cost Trends as cited in Kaiser Family Foundation (2006) Percent of Private Sector Establishments that Offer Health Insurance to Employees, 2003 and Percent of Private Sector Establishments that Offer Health Insurance to Employees, by Firm Size, 2003. Retrieved July 6, 2006 from http://www.statehealthfacts.org (See Private Sector Coverage.)

Medicaid Eligibility – Pregnant Women

The Medicaid income eligibility level for pregnant women as a percentage of the Federal Poverty Level (FPL).

Source: Table 1: A Time of Growing Need: State Choices Influence Health Coverage Access for Children and Families. Survey data from the Center on Budget and Policy Priorities for the Kaiser Commission on Medicaid and the Uninsured, October 2005 as cited in Kaiser Family Foundation (2005). Income Eligibility Levels for Pregnant Women Applying for Medicaid by Annual Income and as a Percent of Federal Poverty Level (FPL), 2005. Retrieved July 6, 2006 from http://www.statehealthfacts.org/. Web site provides additional details about Medicaid eligibility in the following states: Alaska, California, Colorado, Hawaii, Iowa, New Jersey, Rhode Island, and Vermont.

Medicaid Eligibility – Children

The Medicaid income eligibility level, as a percentage of the Federal Poverty Level (FPL). SCHIP eligibility levels are not included.

Source: Table 1: A Time of Growing Need: State Choices Influence Health Coverage Access for Children and Families, Table 1. Survey data from the Center on Budget and Policy Priorities for the Kaiser Commission on Medicaid and the Uninsured, October 2005 as cited in Kaiser Family Foundation (2005). Income Eligibility Levels for Children’s Regular Medicaid by Annual Incomes and as a Percent of Federal Poverty Level (FPL), 2005. Retrieved July 6, 2006 from http://www.statehealthfacts.org. Web site provides additional details about Medicaid eligibility in the following states: Alaska, Florida, Georgia, Illinois, Maine, New Jersey, Hawaii, Massachusetts, Pennsylvania, Minnesota, North Carolina, Tennessee, and Vermont.

Federal Match for Medicaid

The state-specific multiplier that the federal government uses to determine the rate at which a given state’s Medicaid dollars are matched, as of 2006. The official term is Federal Medical Assistance Percentage (FMAP).

Source: Federal Register, November 24, 2004 (Vol. 69, No. 226), pp. 68372 as cited in Kaiser Family Foundation (2006). Federal Matching Rate (FMAP) for Medicaid and Multiplier, FY 2006. Retrieved July 6, 2006 from http://www.statehealthfacts.org.

Education Expenditures – Per Pupil

Per pupil education spending in 2000-2001.

Source: U.S. Department of Education, National Center on Education Statistics, Common Core of Data as cited in U.S. Department of Education, Office of Special Education and Rehabilitative Services, Office of Special Education Programs, 25th Annual Report to Congress on the Implementation of the Individuals with Disabilities Education Act, 2003. Washington, D.C. Retrieved July 6, 2006 from http://www.ed.gov.

Education Expenditures – Per Pupil IDEA

Federal per pupil spending for students 3-21 years old. Calculated as the total number of children served under the Individual with Disabilities Education Act, Part B by the total state grant award for IDEA, Part B in 2002-2003.

Source: U.S. Department of Education, National Center on Education Statistics, Common Core of Data as cited in U.S. Department of Education, Office of Special Education and Rehabilitative Services, Office of Special Education Programs, 25th Annual (2003) Report to Congress on the Implementation of the Individuals with Disabilities Act, Washington, D.C. Retrieved July 6, 2006 from http://www.ed.gov.

Health Care – Children’s Hospitals

The number of children’s hospitals in the state.

Source: National Association of Children’s Hospitals and Related Institutions (NACHRI), 2006. Member Hospital Profiles Search: United States. Retrieved June 16, 2006 from http://www.childrenshospitals.net.

Health Care – Number of Pediatricians

The number of pediatricians per 1,000 children.

Source: American Academy of Pediatrics. Pediatrician Participation in Medicaid/SCHIP, Survey of Fellows of the American Academy of Pediatrics, 2000. Retrieved July 6, 2006 from http://www.aap.org/, divided by total number of children in state, multiplied by 1000.

Health Care – Pediatricians in Medicaid

The percentage of pediatricians participating in Medicaid in 2000.

Source: American Academy of Pediatrics (2000). Pediatrician Participation in Medicaid/SCHIP, Survey of Fellows of the American Academy of Pediatrics, 2000. Retrieved July 6, 2006 from http://www.aap.org.

Early Intervention Eligibility

Eligibility for Early Intervention services includes infants and toddlers at risk of developmental delay.

Source: U.S. Department of Education, Office of Special Education and Rehabilitative Services, Office of Special Education Programs, 25th Annual (2003) Report to Congress on the Implementation of the Individuals with Disabilities Education Act, 2003, Washington, D.C. Retrieved July 6, 2006 from http://www.ed.gov.

Mental Health Services

Children served by state mental health system per 1,000 population in 2003.

Source: SAMHSA National Mental Health Information Center (2005). 2003 CMHS Uniform Reporting System Output Tables. Retrieved July 6, 2006 from http://www.mentalhealth.samhsa.gov/.

Oral Health

The percentage of children receiving preventative dental care in the last year and the percentage of children with teeth in excellent or good condition.

Source: U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau and parent report in National Survey of Children’s Health 2003. Rockville, Maryland: U.S. Department of Health and Human Services, 2005. Retrieved July 6, 2006 from http://www.mchb.hrsa.gov/.

Foster Care

The number and percentage of children in foster care on the last day of September in 2003. Calculated by dividing number of children in foster care by total number of children in the state.

Source: U.S. Department of Health and Human Services, Administration for Children and Families, Children’s Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (2005). Foster Care FY1999-FY2003 Entries, Exits, and Numbers of Children In Care on the Last Day of Each Federal Fiscal Year. Retrieved July 6, 2006 from http://www.acf.hhs.gov.

Uninsured

The percentage of all children and the percentage of all CYSHCN without health insurance at some point in the previous year.

Source: Parent report in National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/.

Private Insurance Coverage

The percentage of all children and the percentage of all CYSHCN with private health insurance coverage in 2001.

Source: Parent report in National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/.

Public Coverage: Medicaid

The number of children enrolled in Medicaid in 2003.

Source: Medicaid Statistical Information System (MSIS) reports from the Centers for Medicare and Medicaid Services (CMS) as cited in Kaiser Family Foundation (2003). Distribution of Medicaid Enrollees by Enrollment Group, FY2003. Retrieved July 6, 2006 from http://www.statehealthfacts.org/.

The percentage of all children enrolled in Medicaid in 2001.

Source: Parent report in National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/.

The percentage of CYSHCN enrolled in Medicaid in 2001.

Source: Parent report in National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/.

Public Coverage: SCHIP

2005mincome limit for SCHIP eligibility, as a percentage of the federal poverty level.

Source: Income Eligibility Levels for Children’s Separate SCHIP Programs by Annual Incomes and as a Percent of Federal Poverty Level, 2005. Retrieved August 4, 2006, from Kaiser statehealthfacts.org: 50 State Comparisons: Income Eligibility Levels for Children’s Separate SCHIP Programs by Annual Incomes and as a Percent of Federal Poverty Level, 2005 Web site:http://tinyurl.com/y3lsnc.

The number of children enrolled in SCHIP in December 2004. The percentage of all children enrolled in SCHIP was obtained by dividing the number of children enrolled in SCHIP by the total number of children in the state.

Source: Kaiser Commission on Medicaid and the Uninsured as cited in Kaiser Family Foundation (2005). Current Monthly SCHIP Enrollment, December 2004. Retrieved July 6, 2006 from http://www.statehealthfacts.org/.

Public Coverage: Capitated Health Plans

The percentage of Medicaid and SCHIP enrollees in capitated health plans.

Source: American Academy of Pediatrics. Medicaid Payment Systems and SCHIP Payment Systems, Survey of Fellows of the American Academy of Pediatrics, 2000. Retrieved July 6, 2006 from http://www.aap.org/.

Public Coverage: SSI

The number of children enrolled in SSI in 2003. The percentage of all children enrolled in SSI was obtained by dividing the number of children enrolled in SSI by the total number of children in the state.

Source: Annual Statistical Report on the Social Security Disability Insurance Program, 2003, Social Security Administration, Office of Policy, SSI Recipients by State and County, 2003 as cited in Kaiser Family Foundation (2003). Distribution of Supplemental Security Income (SSI) Beneficiaries by Age, 2003. Retrieved July 6, 2006 from http://www.statehealthfacts.org/.

Public Coverage: TEFRA/Katie Beckett

States offering the TEFRA State Plan Option for Severely Disabled Children, also known as Katie Beckett waivers.

Source: Maternal and Child Health Policy Research Center: The Child Health Program Impact Series. (May 2005). From http://www.mchpolicy.org/. States’ use of Medicaid options for expanding children’s eligibility. Fox, H.B., & Limb S.J., with confirmation from state representatives.

Dual Public and Private Coverage

The percentage of all children and the percentage of CYSHCN with a combination of public and private coverage.

Source: Calculated by Catalyst Center using parent report data from National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/.

Underinsured

The percentage of CYSHCN whose parents reported inadequate insurance coverage.

Source: Calculated by Catalyst Center using parent report data from National Survey of Children with Special Health Care Needs, Data Resource Center on Child and Adolescent Health Web site. Retrieved July 6, 2006 from http://cshcndata.org/.

State Mandated Benefits – Early Intervention

States that mandate private insurers to provide coverage for Early Intervention services.

Source: Catalyst Center communications with state agency contacts and review of state statutes.

State Mandated Benefits – Mental Health Parity

States that mandate managed care organizations provide mental health parity.

Source: State Mandated Benefits: Mental Health Parity, 2004, The Henry J. Kaiser Family Foundation, Retrieved July 6, 2006 from http://www.statehealthfacts.org/.

State Mandated Benefits – All Others

States that mandate all insurers to provide coverage for autism, bone marrow transplants, cleft palate, congenital bleeding disorders, dental anesthesia, diabetes self-management, diabetic supplies, emergency services, hearing aids, home health care, hospice care, kidney disease treatment, mental health services, neurodevelopment therapy, newborn hearing screening, newborn sickle cell testing, PKU/formula, port wine stain elimination, prescription drugs, rehabilitation services and Wilms tumor, as of 2006.

Source: Health Insurance Mandates in the States, 2006, Center for Affordable Health Insurance Retrieved July 6, 2006 from http://www.cahi.org/.

Catastrophic Coverage

States that offered high-risk health insurance pools in 2004.

Source: National Association of State Comprehensive Health Insurance Plans as cited in the Kaiser Family Foundation (2006). State High-Risk Health Insurance Pool Programs, December 31, 2004. Retrieved July 6, 2006 from http://www.statehealthfacts.org/.

Premium Assistance Programs

States that offer premium assistance programs.

Source: Premium Assistance Toolbox for States, February 2004. National Academy for State Health Policy. Retrieved August 3, 2006, with updated information from Unpublished State Surveys of Title V and Medicaid Program Staff and, Family Leaders. The Catalyst Center: Improving Financing of Care for Children and Youth with Special Health Care Needs.

Title V Financing

The percentage of the state’s 2006 Title V Block Grant Partnership Budget that is from state funds.

Source: U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2006). Federal-State Title V Block Grant Partnership Budget FY 2006. Retrieved July 6, 2006 from https://perfdata.hrsa.gov/mchb/mchreports/Search/financial/finsch01.asp.

Title V Family Involvement

Family Participation Score in the Title V CSHCN Program in 2004, based on a 3-point scale for each of 6 items.

Source: U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2006). Characteristics Documenting Family Participation in Children with Special Health Care Needs (CSHCN) Programs. Retrieved July 6, 2006 from https://perfdata.hrsa.gov/mchb/mchreports/Search/program/prgsch05.asp.