Publications & More

Below is a list of our publications sorted by date created, from most to least recent. 

Resource TitleDate CreatedTopic Area
Reducing Health Insurance Inequities among Latino Families Raising Children with Special Health Care Needs Feb. 2015 Coverage and Financing Inequities
Improving Access to Coverage for Children with Special Health Care Needs in the Face of Health Inequities: Strategies Reported by Family Leadership Organizations Feb. 2015 Coverage and Financing Inequities
The Affordable Care Act: A Working Guide for MCH Professionals (“ACA 101”) Jan. 2015 Health Care Reform
Affordable Care Act Fact Sheets for Families: Fact sheets that explain ACA provisions: Concurrent Care, Habilitative Services, Health Home Programs/Coordinated Care, and Marketplace and Medicaid Coverage for Children with Disabilities Dec. 2014 Health Care Reform
TEFRA and FOA Medicaid Buy-in Programs: An Educational Worksheet Sept. 2014 Medicaid
Webinar and Policy Brief: New England Children with Genetic Disorders and Health Reform: Information and Recommendations for State Policymakers Sept. 2014 Health Care Reform
Fact sheet: Section 2703, The Medicaid Health Home Provision of the Affordable Care Act: an Overview June 2014 Health Care Reform
Health & Social Work Journal article: Disparities in Insurance Coverage among Children with Special Health Care Needs: How Social Workers Can Promote Social and Economic Justice May 2014 Coverage and Financing Inequities
Fact sheet: Low-Income Children with Special Health Care Needs and the Affordable Care Act Mar. 2014 Coverage and Financing Inequities
Fact sheet: Immigrant Children with Special Health Care Needs and the Affordable Care Act Mar. 2014 Coverage and Financing Inequities
Webinar: The Affordable Care Act and Children with Vision and Eye Health Needs Jan. 2014 Health Care Reform
Your Questions Answered: Are Families of Medicaid-enrolled Children with Disabilities Eligible for Subsidized Marketplace Coverage? Dec. 2013 Health Care Reform
Fact sheet: Health Inequities and Children with Special Health Care Needs Dec. 2013 Coverage and Financing Inequities
AUCD Conference Presentation: The ABCs of the ACA for the AUCD Network and Health Care Reform Jeopardy Nov. 2013 Health Care Reform
APHA 2013 presentation: The ACA and Children with Special Health Care Needs: Opportunities and Challenges [PDF] Nov. 2013 Health Care Reform
Fact Sheet: Medicaid and Children with Special Health Care Needs/Disabilities: An Overview Oct. 2013 Medicaid and Children with Special Health Care Needs
Fact Sheet: The Children’s Health Insurance Program (CHIP) and Children with Special Health Care Needs: An Overview Oct. 2013 Medicaid and Children with Special Health Care Needs
Infographic: Medicaid & CHIP: What’s the Difference? Oct. 2013 Medicaid and Children with Special Health Care Needs
Beyond the Rhetoric: What the ACA Means for My Family June 2013 Health Care Reform
Webinar slides: the ACA and Genetic Conditions – Opportunities and Challenges [PDF] June 2013 Health Care Reform
Youth and Young Adults in Transition Jeopardy Game June 2013 Youth Transition
Webinar recording: Health Insurance for CYSHCN from Immigrant Families June 2013 Coverage and Financing Inequities
Legislative Briefing on California Children with Special Health Care Needs April 2013 Medicaid and Children with Special Health Care Needs
Your Questions About the Medicaid Expansion Provision of the Affordable Care Act Answered October 2012 Youth Transition
Financing the Special Health Care Needs of Children in Foster Care: A Primer September 2012 Children in Foster Care
Intellectual and Developmental Disabilities journal article: State Health Care Financing Strategies for Children with Intellectual and Developmental Disabilities June 2012 Fundamentals
U.S. Supreme Court Ruling–What’s Next for Children and Youth with Special Health Care Needs? June 2012 Health Care Reform
Your Questions on the Essential Health Benefits Bulletin Answered June 2012 Health Care Reform
Risk Adjustment and Other Financial Protections for Children with Special Health Care Needs in Our Evolving Health Care System May 2012 Health Care Reform
Issue Brief: The Affordable Care Act and Children and Youth with Autism Spectrum Disorder and Other Developmental Disabilities [PDF] May 2012 Health Care Reform
It’s Not Hard, It Just Takes Time:  Community Clinic Closes Gaps in Health Care for Children in Foster Care  March 2012  Children in Foster Care
Public Insurance Programs and Children with Special Health Care Needs: A Tutorial on the Basics of Medicaid and the Children’s Health Insurance Program (CHIP) February 2012 Medicaid and Children with Special Health Care Needs, Health Care Reform
Webinar series based on above Medicaid and CHIP tutorial April – Sept. 2012 Medicaid and Children with Special Health Care Needs, Health Care Reform
Medicaid Matters for Kids Congressional Briefing: What We Told Them February 2012 Medicaid and Children with Special Health Care Needs
Webinar: Children and the Medicaid Health Home State Plan Option December 2011 Medicaid and Children with Special Health Care Needs, Health Care Reform, Care Coordination
Children in Foster Care Are Children with Special Health Care Needs November 2011 Children in Foster Care
Medicaid and Children with Special Health Care Needs roundup page July 2011 Medicaid and Children with Special Health Care Needs
A Spotlight on the Special Health Care Needs of Children in Foster Care  July 2011  Children in Foster Care
Financing Pediatric Palliative and Hospice Care Programs [PDF] April 2011 Paying for Additional Services
Presentation: Health Insurance Options for Children with Autism Spectrum Disorders [PDF] March 2011 Fundamentals
What’s the Deal with MOE? States want to cut Medicaid spending. Are CYSHCN at risk? [PDF] March 2011 Health Care Reform
Presentation at 2011 AMCHP & Family Voices Conference:  Medicaid Buy-In Programs: Do They Make a Difference to Families of Children with Special Health Care Needs? [PDF] February 2011 Family Opportunity Act and Medicaid Buy-In Programs
The Massachusetts Child Psychiatry Access Project:  Combining Innovation and Collaboration to Enhance Children’s Mental Health Services in the Primary Care Setting [PDF] February 2011 Children’s Mental Health Services
The Affordable Care Act: a side-by-side comparison of major provisions and the implications for children and youth with special health care needs [PDF] (companion piece to below NASHP publication)  February 2011 Health Care Reform
The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers [PDF] (A publication by the National Academy for State Health Policy (NASHP) for the Catalyst Center) January 2011 Health Care Reform
Webcast:  The Affordable Care Act and Children with Special Health Care Needs (associated with the above NASHP publication) January 2011 Health Care Reform
States Seek Alternatives to Medicaid Spending When Families of CYSHCN Can Least Afford Them December 2010 News and Topics of Interest
Dancing with Data: Using data to support your message November 2010 Family Involvement/
Participation in Policy and Planning
Children’s Health Policy Blog posting: Medicaid and CHIP Buy-In Could Help Children Excluded From Private Market October 2010 News and Topics of Interest
Video: Bridging the gaps for families of children with special health care needs: RI Pediatric Practice Enhancement Project October 2010 Family Involvement/
Participation in Policy and Planning
Celebrate 2010: A decade of progress for children and youth with special health care needs October 2010 Family Involvement/
Participation in Policy and Planning
Video:  Working Hard Isn’t Enough:  One Family’s Struggle to Finance Their Child’s Special Health Care Needs October 2010 Medical Debt and Family Financial Hardship
Care Coordination in a Statewide System of Care: Financing Models and Payment Strategies October 2010 Care Coordination
Fact Sheet:  Health Care Reform: What’s in it for Children and Youth with Special Health Care Needs? [PDF] October 2010 Health Care Reform
Presentation: Essential Elements of Health Care Reform for CSYHCN:  Looking to the Future – Opportunities and Challenges for MCH [PDF] October 2010 Health Care Reform
Presentation: National Health Care Reform: What Does it Mean to Massachusetts Children with Special Health Care Needs? [PDF] October 2010 Health Care Reform
Selected Provisions in Federal and State Health Care Reform that are Important to CSHCN in Massachusetts [PDF] October 2010 Health Care Reform
Health and Social Work Journal Article: Minimizing Financial Hardship for Families of Children with Special Health Care Needs August 2010 Medical Debt and Family Hardship
Just the Facts: The 411 on Health Insurance for Young Adults Ages 18 – 30 in Florida  June 2010  Youth Transition
Presentation: Essential Components of Health Care Reform for CSHCN [PDF] January 2010 Health Care Reform
Presentation: Health Insurance and Children with Epilepsy [PDF] December 2009 Fundamentals
Presentation: What do CYSHCN Require from Health Care Reform? [PDF] October 2009 Health Care Reform
The Essential Components of Health Care Reform for Children with Special Health Care Needs (CSHCN) September 2009 Health Care Reform
Case Study: Buying into a Medicaid Buy-in Program: The Texas Experience September 2009 Family Opportunity Act (FOA) and Medicaid Buy-In Programs
Health Care Reform and CSHCN: Coverage is not Enough
July 2009 Health Care Reform
Health Care Reform and the Massachusetts CommonHealth Program: An Important Foundation to Build on for Children with Disabilities July 2009 Health Care Reform
Estimating the Cost per Child Under the Family Opportunity Act’s Medicaid Buy-in Option: An Update March 2009 Family Opportunity Act (FOA) and Medicaid Buy-In Programs
Breaking the Link Between Special Health Care Needs and Financial Hardship February 2009 Medical Debt and Family Financial Hardship
Presentation: Financial Hardship Among Families of CSHCN [PDF] December 2008 Medical Debt and Family Financial Hardship
Designing Evaluation Studies of Care Coordination Outcomes for Children and Youth with Special Health Care Needs August 2008 Care Coordination
Mandated Benefits: Essential to Children and Youth with Special Health Care Needs June 2008 Fundamentals
Relief Funds: A Safety Net for Children and Youth with Special Health Care Needs August 2007 Paying for Additional Services
Medicaid as a Second Language: A Slightly Irreverent Guide to Common Medicaid Terms, Acronyms and Abbreviations March 2007 Fundamentals
Payer of Last Resort: Medical Debt and Financial Hardship Among Families Raising Children and Youth with Special Health Care Needs March 2007 Medical Debt and Family Financial Hardship
Frequently Asked Questions about the Family Opportunity Act’s Medicaid Buy-In Option February 2007 Family Opportunity Act (FOA) and Medicaid Buy-In Programs
State-at-a-Glance Chartbook on Coverage and Financing of Care for Children and Youth with Special Health Care Needs January 2007 State Financing
Methodology for Estimating the Impact of State Implementation of the Family Opportunity Act (PDF) November 2006 Family Opportunity Act (FOA) and Medicaid Buy-In Programs
Reducing Under-Insurance for Children and Youth with Special Health Care Needs November 2006 Family Opportunity Act (FOA) and Medicaid Buy-In Programs
Why Health Insurance Is Important to Children and Youth with Special Health Care Needs July 2006 Fundamentals
Past issues of Catalyst Center Quarterly e-newsletter and weekly Coverage Ongoing News and Topics of Interest
Family Stories Ongoing Medical Debt and Family Financial Hardship
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