| Number of children in foster care | 402,378 |
Source: U.S. Dept. of Health and Human Services, Administration for Children and Families, Children’s Bureau (2014)
| Percentage of children in foster care | 0.5% |
Source: U.S. Dept. of Health and Human Services, Administration for Children and Families, Children’s Bureau (2014)
| Percentage of CYSHCN without health insurance at some point in the past year, by age groups |
| 0-5 years | 9.1% |
| 6-11 years | 9.2% |
| 12-17 years | 9.4% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN without health insurance at some point in the past year, by sex |
| Male | 9.5% |
| Female | 8.9% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN without health insurance at some point in the past year, by race/ethnicity |
| Hispanic | 15.9% |
| White non-Hispanic | 7.3% |
| Black non-Hispanic | 9.9% |
| Other non-Hispanic | 9.4% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN without health insurance at some point in the past year, by primary household language |
| Hispanic child/Spanish language household | 22.2% |
| Hispanic child/English language household | 12.6% |
| Non-Hispanic child | 8.0% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN without health insurance at some point in the past year, by household income |
| 0-99% FPL | 14.2% |
| 100-199% FPL | 14.1% |
| 200-399% FPL | 8.5% |
| 400% or more FPL | 2.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN without health insurance at some point in the past year, by number of functional difficulties |
| No difficulties | 4.4% |
| 1 difficulty | 5.9% |
| 2 difficulties | 9.0% |
| 3 difficulties | 9.9% |
| 4 or more difficulties | 11.7% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN without health insurance at some point in the past year | 9.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.
| Percentage of children with inadequate health care coverage | 23.5% |
Source: National Survey of Children’s Health (2011-2012)
| Percentage of CYSHCN with inadequate health care coverage, by age groups |
| 0-5 years | 31.6% |
| 6-11 years | 34.6% |
| 12-17 years | 35.5% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with inadequate health care coverage, by sex |
| Male | 34.5% |
| Female | 34.1% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with inadequate health care coverage, by race/ethnicity |
| Hispanic | 37.9% |
| White non-Hispanic | 33.0% |
| Black non-Hispanic | 35.9% |
| Other non-Hispanic | 33.9% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with inadequate health care coverage, by primary household language |
| Hispanic child/Spanish language household | 39.9% |
| Hispanic child/English language household | 37.0% |
| Non-Hispanic child | 33.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with inadequate health care coverage, by household income |
| 0-99% FPL | 34.3% |
| 100-199% FPL | 34.3% |
| 200-399% FPL | 36.9% |
| 400% or more FPL | 31.9% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with inadequate health care coverage, by number of functional difficulties |
| No difficulties | 23.2% |
| 1 difficulty | 26.5% |
| 2 difficulties | 30.7% |
| 3 difficulties | 32.6% |
| 4 or more difficulties | 41.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with inadequate health care coverage | 34.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Relatively few CYSHCN lack insurance completely. However, private coverage is often too limited to meet their health needs, Thus, in many states, underinsurance is the major financial barrier to health care access for CYSHCN.
*Estimates based on sample sizes too small to meet standards for reliability or precision.
| Percentage of children with private health insurance coverage | 57.4% |
Source: National Survey of Children’s Health (2011-2012)
| Percentage of CYSHCN with private health insurance coverage, by age groups |
| 0-5 years | 46.1% |
| 6-11 years | 51.4% |
| 12-17 years | 56.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with private health insurance coverage, by sex |
| Male | 51.9% |
| Female | 53.0% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with private health insurance coverage, by race/ethnicity |
| Hispanic | 35.7% |
| White non-Hispanic | 63.4% |
| Black non-Hispanic | 30.6% |
| Other non-Hispanic | 49.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with private health insurance coverage, by primary household language |
| Hispanic child/Spanish language household | 15.9% |
| Hispanic child/English language household | 46.1% |
| Non-Hispanic child | 55.7% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with private health insurance coverage, by household income |
| 0-99% FPL | 5.9% |
| 100-199% FPL | 27.7% |
| 200-399% FPL | 71.8% |
| 400% or more FPL | 90.2% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with private health insurance coverage, by number of functional difficulties |
| No difficulties | 74.7% |
| 1 difficulty | 68.9% |
| 2 difficulties | 61.6% |
| 3 difficulties | 52.2% |
| 4 or more difficulties | 38.2% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with private health insurance coverage | 52.4% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.
| Number of children enrolled in Medicaid | 32,931,900 |
Tip: Because 2011 data were unavailable, 2010 data was used for Florida, Kansas, Maine, Maryland, Montana, New Mexico, New Jersey, Oklahoma, Texas, and Utah.
| Percentage of Medicaid enrollees who are children | 48% |
Source: Kaiser Family Foundation (2012)
| Percentage of children enrolled in Medicaid or CHIP | 37.1% |
Source: National Survey of Children’s Health (2011-2012)
| Percentage of CYSHCN enrolled in Medicaid or CHIP, by age groups |
| 0-5 years | 41.2% |
| 6-11 years | 36.9% |
| 12-17 years | 32.1% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN enrolled in Medicaid or CHIP, by sex |
| Male | 36.1% |
| Female | 35.5% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN enrolled in Medicaid or CHIP, by race/ethnicity |
| Hispanic | 46.4% |
| White non-Hispanic | 27.0% |
| Black non-Hispanic | 56.0% |
| Other non-Hispanic | 37.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN enrolled in Medicaid or CHIP, by primary household language |
| Hispanic child/English language household | 40.6% |
| Non-Hispanic child | 33.7% |
| Hispanic child/Spanish language household | 57.5% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN enrolled in Medicaid or CHIP, by household income |
| 0-99% FPL | 77.9% |
| 100-199% FPL | 55.9% |
| 200-399% FPL | 17.2% |
| 400% or more FPL | 4.5% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN enrolled in Medicaid or CHIP, by number of functional difficulties |
| No difficulties | 19.5% |
| 1 difficulty | 24.0% |
| 2 difficulties | 29.0%* |
| 3 difficulties | 36.6% |
| 4 or more difficulties | 45.9% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN enrolled in Medicaid or CHIP | 35.9% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.
| Maximum allowed income for CHIP eligibility as a percentage of the FPL | N/A |
Source: Kaiser Family Foundation (2015)
Tip: MAGI Adjusted
| Number of children enrolled in CHIP | 8,129,426 |
Source: Kaiser Family Foundation (2014)
Tip: Accounts for churn
| Percentage of children enrolled in CHIP | 10.4% |
Source: Kaiser Family Foundation (2014)
| Number of children enrolled in Supplemental Security Income (SSI) | 1,321,681 |
Source: Kaiser Family Foundation (2011)
| Percentage of children enrolled in Supplemental Security Income (SSI) | 1.8% |
Source: Kaiser Family Foundation (2013) and U.S. Census Bureau (2010)
| TEFRA Medicaid state plan option/Katie Beckett waiver for children | Yes=23 |
Source: American Journal of Law and Medicine (2011)
| Premium Assistance Programs | Yes= 36 |
Source: Employee Benefits Security Administration (2014)
| Percentage of CYSHCN with a combination of public and private health insurance, by sex |
| Male | 8.4% |
| Female | 7.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with a combination of public and private health insurance, by race/ethnicity |
| Hispanic | 11.1% |
| White non-Hispanic | 6.9% |
| Black non-Hispanic | 9.7% |
| Other non-Hispanic | 3.7% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with a combination of public and private health insurance, by age groups |
| 0-5 years | 9.7% |
| 6-11 years | 8.4% |
| 12-17 years | 7.2% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with a combination of public and private health insurance, by household income |
| 0-99% FPL | 11.1% |
| 100-199% FPL | 11.1% |
| 200-399% FPL | 7.1% |
| 400% or more FPL | 4.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with a combination of public and private health insurance, by number of functional difficulties |
| No difficulties | 4.3% |
| 1 difficulty | 4.7% |
| 2 difficulties | 5.9% |
| 3 difficulties | 7.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with a combination of public and private health insurance, by primary household language |
| Hispanic child/English language household | 8.1% |
| Non-Hispanic child | 7.6% |
| Hispanic child/Spanish language household | 16.7% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
| Percentage of CYSHCN with a combination of public and private health insurance | 8.2% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Dual coverage is an option in states which permit privately insured families to enroll their children in Medicaid in order to receive supplemental coverage, sometimes known as “wrap-around” coverage. This type of secondary Medicaid enrollment may be offered free or through the payment of premiums based on a sliding scale. Dual coverage helps address underinsurance, which is a significant problem for many privately insured CYSHCN whose coverage is too limited to meet their health needs.
*Estimates based on sample sizes too small to meet standards for reliability or precision.
| Exchange overview |
| Exchange decision | State run=17; State/fed partnership=7; Fed run=27 |
| Type of exchange | N/A |
Source: Kaiser Family Foundation (2014)
Tip: The term Health Insurance “Exchange” is also used interchangeably with Health Insurance “Marketplace.”
| Recommended benchmark plan | N/A |
Source: Center for Consumer Information and Insurance Oversight (2012)
Source: National Academy for State Health Policy (2014)
| Approved Section 2703 Health Home State Plan Amendments (SPAs) |
| Approved SPA | Yes= 20; No= 31 |
| Target population | N/A |
| Geographic area | N/A |
Source: Kaiser Family Foundation (2015)
Source: Autism Speaks (2014)
| Bone Marrow Transplants | Yes=9 |
| Cleft Palate | Yes=17 |
| Congenital Bleeding Disorders | Yes=3 |
| Dental Anesthesia | Yes=31 |
| Diabetes Self-Management | Yes=38 |
| Diabetic Supplies | Yes=47 |
Source: Center for Affordable Health Insurance (2010)
Source: Catalyst Center communications with state agency contacts and review of state statutes (2011)
| Emergency Services | Yes=45 |
| Hearing Aids | Yes=17 |
| Home Health Care | Yes=20 |
| Hospice Care | Yes=12 |
| Kidney Disease Treatment | Yes=2 |
| Mental Health, General | Yes=42 |
Source: Center for Affordable Health Insurance (2010)
| Mental Health Parity | Yes=23 |
Source: National Conference of State Legislatures (2014)
| Neurodevelopment Therapy | Yes=1 |
| Newborn Hearing Screening | Yes=18 |
| Newborn Sickle-Cell Testing | Yes=4 |
| PKU/Formula | Yes=33 |
| Prescription Drugs | Yes=4 |
| Rehabilitation Services | Yes=6 |
| Telemedicine | Yes=9 |
| High-Risk Pool Programs | Yes=34 |
Source: Kaiser Family Foundation (2011)
| Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by primary household language |
| Hispanic child/English language household | 65.6% |
| Non-Hispanic child | 71.6% |
| Hispanic child/Spanish language household | 59.5% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
| Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by household income |
| 0-99% FPL | 61.8% |
| 100-199% FPL | 67.3% |
| 200-399% FPL | 72.6% |
| 400% or more FPL | 77.2% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
| Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by number of functional difficulties |
| No difficulties | 84.8% |
| 1 difficulty | 79.6% |
| 2 difficulties | 76.4% |
| 3 difficulties | 73.2% |
| 4 or more difficulties | 60.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
| Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by sex |
| Male | 69.5% |
| Female | 71.5% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
| Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by race/ethnicity |
| Hispanic | 63.5% |
| White non-Hispanic | 74.2% |
| Black non-Hispanic | 64.7% |
| Other non-Hispanic | 66.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
| Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health | 70.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive.
| Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by age groups |
| 0-5 years | 44.2% |
| 6-11 years | 42.1% |
| 12-17 years | 43.1% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
| Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by sex |
| Male | 42.6% |
| Female | 43.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
| Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by race/ethnicity |
| Hispanic | 33.2% |
| White non-Hispanic | 48.8% |
| Black non-Hispanic | 33.5% |
| Other non-Hispanic | 39.1% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
| Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by primary household language |
| Hispanic child/English language household | 37.4% |
| Non-Hispanic child | 44.9% |
| Hispanic child/Spanish language household | 24.9% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
| Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by household income |
| 0-99% FPL | 30.9% |
| 100-199% FPL | 37.5% |
| 200-399% FPL | 47.4% |
| 400% or more FPL | 52.2% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
| Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by number of functional difficulties |
| No difficulties | 64.1% |
| 1 difficulty | 58.3% |
| 2 difficulties | 53.3% |
| 3 difficulties | 43.2% |
| 4 or more difficulties | 28.9% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
| Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home | 43.0% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home.
| Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by age groups |
| 0-5 years | 63.2% |
| 6-11 years | 60.3% |
| 12-17 years | 59.4% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
| Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by sex |
| Male | 60.2% |
| Female | 61.0% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
| Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by race/ethnicity |
| Hispanic | 53.6% |
| White non-Hispanic | 62.8% |
| Black non-Hispanic | 58.9% |
| Other non-Hispanic | 61.5% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
| Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by primary household language |
| Hispanic child/Spanish language household | 48.8% |
| Hispanic child/English language household | 56.1% |
| Non-Hispanic child | 61.9% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
| Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by household income |
| 0-99% FPL | 57.8% |
| 100-199% FPL | 58.0% |
| 200-399% FPL | 58.5% |
| 400% or more FPL | 67.0% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
| Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by number of functional difficulties |
| No difficulties | 74.1% |
| 1 difficulty | 69.8% |
| 2 difficulties | 63.9% |
| 3 difficulties | 62.0% |
| 4 or more difficulties | 52.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
| Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need | 60.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need.
| Percentage of CSHCN who are screened early and continuously for special health care needs, by age groups |
| 0-5 years | 64.8% |
| 6-11 years | 83.8% |
| 12-17 years | 80.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
| Percentage of CSHCN who are screened early and continuously for special health care needs, by sex |
| Male | 78.5% |
| Female | 78.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
| Percentage of CSHCN who are screened early and continuously for special health care needs, by race/ethnicity |
| Hispanic | 74.9% |
| White non-Hispanic | 79.6% |
| Black non-Hispanic | 78.8% |
| Other non-Hispanic | 78.7% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
| Percentage of CSHCN who are screened early and continuously for special health care needs, by primary household language |
| Hispanic child/English language household | 80.3% |
| Non-Hispanic child | 79.3% |
| Hispanic child/Spanish language household | 64.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
| Percentage of CSHCN who are screened early and continuously for special health care needs, by household income |
| 0-99% FPL | 73.2% |
| 100-199% FPL | 75.0% |
| 200-399% FPL | 78.6% |
| 400% or more FPL | 85.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
| Percentage of CSHCN who are screened early and continuously for special health care needs, by number of functional difficulties |
| No difficulties | 79.5% |
| 1 difficulty | 81.5% |
| 2 difficulties | 79.8% |
| 3 difficulties | 76.7% |
| 4 or more difficulties | 77.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
| Percentage of CSHCN who are screened early and continuously for special health care needs | 78.6% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs.
| Percentage of CSHCN who can easily access community-based services, by age groups |
| 0-5 years | 65.9% |
| 6-11 years | 64.8% |
| 12-17 years | 65.0% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
| Percentage of CSHCN who can easily access community-based services, by sex |
| Male | 65.4% |
| Female | 64.7% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
| Percentage of CSHCN who can easily access community-based services, by race/ethnicity |
| Hispanic | 59.2% |
| White non-Hispanic | 67.6% |
| Black non-Hispanic | 64.1% |
| Other non-Hispanic | 60.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
| Percentage of CSHCN who can easily access community-based services, by primary household language |
| Hispanic child/English language household | 60.2% |
| Non-Hispanic child | 66.3% |
| Hispanic child/Spanish language household | 57.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
| Percentage of CSHCN who can easily access community-based services, by household income |
| 0-99% FPL | 59.4% |
| 100-199% FPL | 59.2% |
| 200-399% FPL | 65.6% |
| 400% or more FPL | 74.0% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
| Percentage of CSHCN who can easily access community-based services, by number of functional difficulties |
| No difficulties | 86.5% |
| 1 difficulty | 81.9% |
| 2 difficulties | 74.6% |
| 3 difficulties | 66.9% |
| 4 or more difficulties | 50.4% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
| Percentage of CSHCN who can easily access community-based services | 65.1% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily.
| Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by age groups |
| 12-14 years | 40.7% |
| 15-17 years | 39.4% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
| Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by sex |
| Male | 37.1% |
| Female | 43.8% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
| Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by race/ethnicity |
| Hispanic | 25.3% |
| White non-Hispanic | 45.7% |
| Black non-Hispanic | 28.1% |
| Other non-Hispanic | 40.2% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
| Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by primary household language |
| Hispanic child/English language household | 31.6% |
| Non-Hispanic child | 42.4% |
| Hispanic child/Spanish language household | 12.4% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
| Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by household income |
| 0-99% FPL | 25.4% |
| 100-199% FPL | 31.0% |
| 200-399% FPL | 43.3% |
| 400% or more FPL | 52.2% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
| Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by number of functional difficulties |
| No difficulties | 57.4% |
| 1 difficulty | 55.7% |
| 2 difficulties | 48.3% |
| 3 difficulties | 42.0% |
| 4 or more difficulties | 28.3% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
| Percentage of families who report their child’s doctors or other health care providers are sensitive to the family’s values and customs |
| Always | 69.6% |
| Usually | 19.3% |
| Sometimes or Never | 11.1% |
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.
| Percentage of Title V Block Grant Partnership Budget from State Funds | 45.3% |
Source: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2015)
| Family Participation in Title V CYSHCN Program Score (Maximum Possible = 18) | 13.9 |
Source: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2015)