Catalyst

Federal per pupil IDEA expenditures for children aged 3-21 in Special Education

$1,774

Source: Calculated by Catalyst Center Staff using the total state grant award for special education divided by number of children served under the Individual with Disabilities Education Act (IDEA), Part B. Source for total state grant award for special education: U.S. Department of Education, Rehabilitation Services Administration (RSA). Fiscal Year 2009-FY2011 President’s Budget State Tables for the U.S. Department of Education. Retrieved May 8, 2013 from http://www2.ed.gov/about/overview/budget/statetables/11stbyprogram.pdf. Source for total number of children served under IDEA, Part B: U.S. Department of Education, The National Center for Education Statistics, Digest of Education Statistics (2011). Table 48. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and state or jurisdiction: Selected years, 1990-91 to 2009-10. Retrieved July, 3, 2013 from http://nces.ed.gov/programs/digest/d11/tables/dt11_048.asp

CHILD HEALTH SERVICES

Health Care	US
Number of children’s hospitals	234

Source: National Association of Children’s Hospitals and Related Institutions (NACHRI). Member Hospital Profiles Search: United States. Retrieved on March 6, 2014 from http://www.childrenshospitals.net/AM/Template.cfm?Section=Home3&Template;=/CustomSource/HospitalProfiles/HospitalProfileSearch.cfm

Number of pediatricians per 1,000 children

1.05

Source: Calculated by Catalyst Center staff using the number of pediatricians in each state divided by the total number of children per 1,000. Source for the number of pediatricians per state: American Board of Medical Specialties, 2012 ABMS Certificate Statistics, Table 3C: Geographic Distribution of ABMS Member Board Diplomats by General Certificate (as of October 9, 2012). Retrieved on March 11, 2014 from https://shopping.abms.org/showDownload.aspx. Source for the number of children per state: Population Distribution by Age, States (2011-2012), U.S. (2012). Retrieved March 11, 2014 from http://kff.org/other/state-indicator/distribution-by-age/#

Number of family practitioners

82,387

Source: American Board of Medical Specialties, 2012 ABMS Certificate Statistics, Table 3C: Geographic Distribution of ABMS Member Board Diplomats by General Certificate (as of October 9, 2012). Retrieved March 11, 2014 from https://shopping.abms.org/showDownload.aspx

Number of child and adolescent psychiatrists per 1,000 children

0.06

Source: Calculated by Catalyst Center staff using the number of child and adolescent psychiatrists in each state divided by the total number of children per 1,000. Source for the number of pediatricians per state: American Board of Medical Specialties, 2012 ABMS Certificate Statistics, Table 3E: Geographic Distribution of ABMS Member Board Diplomats by Subspecialty Certificate (as of October 15, 2012). Retrieved March 11, 2014 from https://shopping.abms.org/showDownload.aspx. Source for the number of children per state: Population Distribution by Age, States (2011-2012), U.S. (2012). Retrieved March 11, 2014 from http://www.statehealthfacts.org/comparebar.jsp?typ=1&ind;=2&cat;=1⊂=1

Early Intervention Eligibility	US
Eligibility for Early Intervention services includes infants and toddlers “at risk” of developmental delay	Yes=6

Source: Early Childhood Technical Assistance Center, University of North Carolina, Chapel Hill. Retrieved June 13, 2013 from http://www.nectac.org/~pdfs/topics/earlyid/partc_elig_table.pdf

Mental Health	US
Number of children served by state mental health authority, per 1,000 children
Aged 0-12	21.4
Aged 13-17	41.2
Aged 18-20	26.0

Source: Substance Abuse and Mental Health Services Administration (SAMHSA) National Mental Health Information Center (2012). 2012 CMHS Uniform Reporting System Output Tables. Retrieved March 6, 2014 from http://www.samhsa.gov/dataoutcomes/urs/urs2012.aspx

Percentage of CSHCN with emotional, behavioral or developmental issues whose families have adequate private and/or public insurance to pay for the services they need

65.7%

Oral Health	US
Percentage of children receiving preventive dental care in the past year	77.2%

Source: National Survey of Children’s Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=2500&r;=1

Percentage of CSHCN receiving preventive dental care in the past year

83.1%

Source: National Survey of Children’s Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 3, 2013 from http://childhealthdata.org/browse/survey/results?q=2500&r;=1&g;=461

Percentage of children with teeth in excellent or very good condition

71.3%

Percentage of CSHCN with teeth in excellent or very good condition

64.9%

Foster Care	US
Number of children in foster care	397,122

Source: U.S. Department of Health and Human services, Administration for Children and Families, Children’s Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (2013). Foster Care FY 2003 – FY 2012 Entries, Exits, and Numbers of Children In Care on the Last Day of Each Federal Fiscal Year. Retrieved on March 6, 2014 from http://www.acf.hhs.gov/programs/cb/resource/fy2003-2012-foster-care-entries-exits

Percentage of children in foster care

0.5%

Source: Calculated by Catalyst Center staff using the number of children in foster care in each state divided by the total number of children in each state. Source for the number of children in foster care per state: Adoption and Foster Care Analysis and Reporting System (AFCARS) Foster Care FY 2003 – FY 2012 Entries, Exits, and Numbers of Children In Care on the Last Day of Each Federal Fiscal Year. (2013). Retrieved March 6, 2014 from http://www.acf.hhs.gov/programs/cb/resource/fy2003-2012-foster-care-entries-exits. Source for the number of children per state: Population Distribution by Age, States (2011-2012), U.S. (2012). Retrieved March 6, 2014 from http://kff.org/other/state-indicator/distribution-by-age/

FACTORS INFLUENCING HEALTH INSURANCE COVERAGE

Uninsured	US
Percentage of children without health insurance at some point in the past year	11.3%

Percentage of CYSHCN without health insurance at some point in the past year, by age groups
0-5 years	9.1%
6-11 years	9.2%
12-17 years	9.4%

Percentage of CYSHCN without health insurance at some point in the past year, by sex
Male	9.5%
Female	8.9%

Percentage of CYSHCN without health insurance at some point in the past year, by race/ethnicity
Hispanic	15.9%
White non-Hispanic	7.3%
Black non-Hispanic	9.9%
Other non-Hispanic	9.4%

Percentage of CYSHCN without health insurance at some point in the past year, by primary household language
Hispanic child/Spanish language household	22.2%
Hispanic child/English language household	12.6%
Non-Hispanic child	8.0%

Percentage of CYSHCN without health insurance at some point in the past year, by household income
0-99% FPL	14.2%
100-199% FPL	14.1%
200-399% FPL	8.5%
400% or more FPL	2.3%

Percentage of CYSHCN without health insurance at some point in the past year, by number of functional difficulties
No difficulties	4.4%
1 difficulty	5.9%
2 difficulties	9.0%
3 difficulties	9.9%
4 or more difficulties	11.7%

Percentage of CYSHCN without health insurance at some point in the past year

9.3%

Underinsured	US
Percentage of children with inadequate health care coverage	23.5%

Source: National Survey of Children’s Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 26, 2013 from http://childhealthdata.org/browse/survey/results?q=2491&r;=1

Percentage of CYSHCN with inadequate health care coverage, by age groups
0-5 years	31.6%
6-11 years	34.6%
12-17 years	35.5%

Percentage of CYSHCN with inadequate health care coverage, by sex
Male	34.5%
Female	34.1%

Percentage of CYSHCN with inadequate health care coverage, by race/ethnicity
Hispanic	37.9%
White non-Hispanic	33.0%
Black non-Hispanic	35.9%
Other non-Hispanic	33.9%

Percentage of CYSHCN with inadequate health care coverage, by primary household language
Hispanic child/Spanish language household	39.9%
Hispanic child/English language household	37.0%
Non-Hispanic child	33.6%

Percentage of CYSHCN with inadequate health care coverage, by household income
0-99% FPL	34.3%
100-199% FPL	34.3%
200-399% FPL	36.9%
400% or more FPL	31.9%

Percentage of CYSHCN with inadequate health care coverage, by number of functional difficulties
No difficulties	23.2%
1 difficulty	26.5%
2 difficulties	30.7%
3 difficulties	32.6%
4 or more difficulties	41.6%

Percentage of CYSHCN with inadequate health care coverage

34.3%

Source: National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=1630&r;=1

Tip: Relatively few CYSHCN lack insurance completely. However, private coverage is often too limited to meet their health needs, Thus, in many states, underinsurance is the major financial barrier to health care access for CYSHCN.

*Estimates based on sample sizes too small to meet standards for reliability or precision.

Private Insurance Coverage	US
Percentage of children with private health insurance coverage	57.4%

Source: National Survey of Children’s Health. NSCH 2011/12. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 26, 2013 from http://childhealthdata.org/browse/survey/results?q=2490&r;=1

Percentage of CYSHCN with private health insurance coverage, by age groups
0-5 years	46.1%
6-11 years	51.4%
12-17 years	56.6%

Percentage of CYSHCN with private health insurance coverage, by sex
Male	51.9%
Female	53.0%

Percentage of CYSHCN with private health insurance coverage, by race/ethnicity
Hispanic	35.7%
White non-Hispanic	63.4%
Black non-Hispanic	30.6%
Other non-Hispanic	49.8%

Percentage of CYSHCN with private health insurance coverage, by primary household language
Hispanic child/Spanish language household	15.9%
Hispanic child/English language household	46.1%
Non-Hispanic child	55.7%

Percentage of CYSHCN with private health insurance coverage, by household income
0-99% FPL	5.9%
100-199% FPL	27.7%
200-399% FPL	71.8%
400% or more FPL	90.2%

Percentage of CYSHCN with private health insurance coverage, by number of functional difficulties
No difficulties	74.7%
1 difficulty	68.9%
2 difficulties	61.6%
3 difficulties	52.2%
4 or more difficulties	38.2%

Percentage of CYSHCN with private health insurance coverage

52.4%

Public Coverage: Medicaid, CHIP and SSI	US
Number of children enrolled in Medicaid	30,746,220
Percentage of Medicaid enrollees who are children	49%

Source: The Kaiser Family Foundation, Distribution of Medicaid Enrollees by Enrollment Group, FY2010. Data Source: Kaiser Commission on Medicaid and the Uninsured and Urban Institute estimates based on data from Medicaid Statistical Information System (MSIS) reports from the Centers for Medicare and Medicaid Services (CMS), 2012. Retrieved April 5,2013 from http://www.statehealthfacts.org/comparemaptable.jsp?typ=1&ind;=200&cat;=4⊂=52

Percentage of children enrolled in Medicaid or CHIP

37.1%

Percentage of CYSHCN enrolled in Medicaid or CHIP, by age groups
0-5 years	41.2%
6-11 years	36.9%
12-17 years	32.1%

Percentage of CYSHCN enrolled in Medicaid or CHIP, by sex
Male	36.1%
Female	35.5%

Percentage of CYSHCN enrolled in Medicaid or CHIP, by race/ethnicity
Hispanic	46.4%
White non-Hispanic	27.0%
Black non-Hispanic	56.0%
Other non-Hispanic	37.8%

Percentage of CYSHCN enrolled in Medicaid or CHIP, by primary household language
Hispanic child/English language household	40.6%
Non-Hispanic child	33.7%
Hispanic child/Spanish language household	57.5%

Percentage of CYSHCN enrolled in Medicaid or CHIP, by household income
0-99% FPL	77.9%
100-199% FPL	55.9%
200-399% FPL	17.2%
400% or more FPL	4.5%

Percentage of CYSHCN enrolled in Medicaid or CHIP, by number of functional difficulties
No difficulties	19.5%
1 difficulty	24.0%
2 difficulties	29.0%*
3 difficulties	36.6%
4 or more difficulties	45.9%

Percentage of CYSHCN enrolled in Medicaid or CHIP

35.9%

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

Maximum allowed income for CHIP eligibility as a percentage of the FPL

N/A

Source: The Kaiser Family Foundation, Medicaid and CHIP Income Eligibility Limits for Children at Application, Effective January 1, 2014 (as a Percent of Federal Poverty Level (FPL)). Data source: Based on data from the Centers for Medicare and Medicaid Services (CMS), State Medicaid and CHIP Income Eligibility Standards Effective January 1, 2014; accessed October 1, 2013. Retrieved on March 11, 2014 from http://kff.org/health-reform/state-indicator/medicaid-and-chip-income-eligibility-limits-for-children-at-application-effective-january-1-2014/#

Number of children enrolled in CHIP

8,148,397

Source: The Kaiser Family Foundation, Number of Children Ever Enrolled in the Children’s Health Insurance Program (CHIP), Fiscal Year 2012. Data source: Medicaid.gov, FY2012 Number of Children Ever Enrolled in Medicaid and CHIP. Retrieved from: http://medicaid.gov/Federal-Policy-Guidance/Downloads/FY-2012-Childrens-Enrollment-04_09_13.pdf. Retrieved March 6, 2014 from http://kff.org/other/state-indicator/annual-chip-enrollment/#

Percentage of children enrolled in CHIP

10.4%

Source: Calculated by Catalyst Center staff using the number of children enrolled in CHIP in each state divided by the total number of children in each state. Source for the number of children enrolled in CHIP per state: Kaiser Family Foundation, Number of Children Ever Enrolled in the Children’s Health Insurance Program (CHIP), Fiscal Year 2012. Data source: Medicaid.gov, FY2012 Number of Children Ever Enrolled in Medicaid and CHIP. Retrieved from http://medicaid.gov/Federal-Policy-Guidance/Downloads/FY-2012-Childrens-Enrollment-04_09_13.pdf Retrieved March 7, 2014 from http://kff.org/other/state-indicator/annual-chip-enrollment/# Source for the number of children per state : Population Distribution by Age, States (2011-2012), U.S. (2012). Retrieved March 7, 2014 from http://kff.org/other/state-indicator/distribution-by-age/#

Number of children enrolled in Supplemental Security Income (SSI)

1,277,122

Source: The Kaiser Family Foundation, Distribution of Supplemental Security Income (SSI) Beneficiaries by Age, 2011. Data Source: 2011: Table 1, SSI Recipients by State and County, 2011, Social Security Administration, Office of Retirement and Disability Policy. Available at: http://www.ssa.gov/policy/docs/statcomps/ssi_sc/2011/table01.html. Retrieved March 12, 2013 from http://www.statehealthfacts.org/comparemaptable.jsp?yr=200&typ;=1&ind;=255&cat;=4⊂=63

Percentage of children enrolled in Supplemental Security Income (SSI)

1.7%

Source: Calculated by Catalyst Center staff using the number of children enrolled in Supplemental Security Income in each state divided by the total number of children in each state. Source for the number of children enrolled in Supplemental Security Income: Distribution of Supplemental Security Income (SSI) Beneficiaries by Age, 2011 Retrieved March 12, 2013 from http://www.statehealthfacts.org/comparemaptable.jsp?ind=255&cat;=4. Source for the number of children per state: Annual Estimates of the Resident Population by Single Year of Age and Sex for the United States, States, and Puerto Rico Commonwealth: April 1, 2010 to July 1, 2012 Retrieved July 3, 2013 from http://factfinder2.census.gov/faces/tableservices/jsf/pages/productview.xhtml?pid=PEP_2012_PEPSYASEX&prodType;=table.

TEFRA Medicaid state plan option/Katie Beckett waiver for children

Yes=23

Source: TEFRA information from “Modernizing Medicaid Eligibility Criteria for Children with Significant Disabilities: Moving from a Disabling to an Enabling Paradigm,” by MaryBeth Musumeci. American Journal of Law and Medicine, 37(2011): 81-127. Katie Beckett waiver information from Catalyst Center staff review of state Medicaid waivers. Retrieved Sept. 24, 2012 from http://www.Medicaid.gov.

Premium Assistance Programs

Yes=38

Source: U.S. Department of Labor, Employee Benefits Security Administration, Premium Assistance under Medicaid and the Children’s Health Insurance Program (CHIP) OMB Control Number 1210-0137 (expires 10/31/2016)(2014). Retrieved March 14, 2014 from http://www.dol.gov/ebsa/pdf/chipmodelnotice.pdf

Dual Public and Private Coverage	US
Percentage of CYSHCN with a combination of public and private health insurance, by sex
Male	8.4%
Female	7.8%

Percentage of CYSHCN with a combination of public and private health insurance, by race/ethnicity
Hispanic	11.1%
White non-Hispanic	6.9%
Black non-Hispanic	9.7%
Other non-Hispanic	3.7%

Percentage of CYSHCN with a combination of public and private health insurance, by age groups
0-5 years	9.7%
6-11 years	8.4%
12-17 years	7.2%

Percentage of CYSHCN with a combination of public and private health insurance, by household income
0-99% FPL	11.1%
100-199% FPL	11.1%
200-399% FPL	7.1%
400% or more FPL	4.6%

Percentage of CYSHCN with a combination of public and private health insurance, by number of functional difficulties
No difficulties	4.3%
1 difficulty	4.7%
2 difficulties	5.9%
3 difficulties	7.3%

Percentage of CYSHCN with a combination of public and private health insurance, by primary household language
Hispanic child/English language household	8.1%
Non-Hispanic child	7.6%
Hispanic child/Spanish language household	16.7%

Percentage of CYSHCN with a combination of public and private health insurance

8.2%

Source: National Survey of Children with Special Health Care Needs. NS-CSHCN 2009/10. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 from http://childhealthdata.org/browse/survey/results?q=1810&r;=1

Tip: Dual coverage is an option in states which permit privately insured families to enroll their children in Medicaid in order to receive supplemental coverage, sometimes known as “wrap-around” coverage. This type of secondary Medicaid enrollment may be offered free or through the payment of premiums based on a sliding scale. Dual coverage helps address underinsurance, which is a significant problem for many privately insured CYSHCN whose coverage is too limited to meet their health needs.

*Estimates based on sample sizes too small to meet standards for reliability or precision.

Health Care Reform	US
Exchange overview
Exchange decision	State run=17; State/fed partnership=7; Fed run=27
Type of exchange	N/A

Source: The Kaiser Family Foundation, State Decisions For Creating Health Insurance Marketplaces, 2014. Data compiled through review of state legislation and other Marketplace documents by the Kaiser Family Foundation. For more detailed descriptions of states’ health insurance Marketplace planning and implementation efforts, please visit State Exchange Profiles. For declaration letters on state-based exchanges from the Governors to HHS click here. Retrieved March 7, 2014 from http://kff.org/health-reform/state-indicator/health-insurance-exchanges/

Tip: The term Health Insurance “Exchange” is also used interchangeably with Health Insurance “Marketplace.”

Recommended benchmark plan

N/A

Source: U.S Department of Health and Human Services, Centers for Medicare and Medicaid Services, Center for Consumer Information and Insurance Oversight, Additional Information on Essential Health Benefits Benchmark Plans, State-required Benefits (2012). Retrieved March 7, 2014 from http://cciio.cms.gov/resources/data/ehb.html

Plan type

N/A

Source: National Academy for State Health Policy, State Refor(u)m, Digging in to Benchmark Plan Details (Updated February 5, 2014). Retrieved March 6, 2014 from https://www.statereforum.org/analyses/state-progress-on-essential-health-benefits

Approved Section 2703 Health Home State Plan Amendments (SPAs)
Approved SPA	Yes=12
Target population	N/A
Geographic area	N/A

Source: The Kaiser Family Foundation, Health Home State Plan Option as of September 2013. Data source: Integrated Care Resource Center, State Integration Activities: Health Homes, April 2013; Medicaid.gov, Health Homes. Retrieved March 11, 2014 from http://kff.org/medicaid/state-indicator/health-home-state-plan-option/

State Mandated Insurance Benefits (for private ins	US
Autism	Yes=35

Source: Autism Speaks, State Initiatives (2014, February). Retrieved on March 10, 2014 from http://www.autismspeaks.org/advocacy/states and http://www.autismspeaks.org/sites/default/files/images/government_affairs/states_feb.2014.pdf

Bone Marrow Transplants	Yes=9
Cleft Palate	Yes=17
Congenital Bleeding Disorders	Yes=3
Dental Anesthesia	Yes=31
Diabetes Self-Management	Yes=38
Diabetic Supplies	Yes=47

Early Intervention

Yes=9

Source: Catalyst Center communications with state agency contacts and review of state statutes (2011)

Emergency Services	Yes=45
Hearing Aids	Yes=17
Home Health Care	Yes=20
Hospice Care	Yes=12
Kidney Disease Treatment	Yes=2
Mental Health, General	Yes=42

Mental Health Parity

Yes=23

Source: National Conference of State Legislatures, State Laws Mandating or Regulating Mental Health Benefits (2014, January). Retrieved March 10, 2014 from http://www.ncsl.org/issues-research/health/mental-health-benefits-state-mandates.aspx

Neurodevelopment Therapy	Yes=1
Newborn Hearing Screening	Yes=18
Newborn Sickle-Cell Testing	Yes=4
PKU/Formula	Yes=33
Prescription Drugs	Yes=4
Rehabilitation Services	Yes=6
Telemedicine	Yes=9

Source: Council for Affordable Health Insurance (CAHI), Health Insurance Mandates in the States 2010. Retrieved March 15, 2011 from http://www.cahi.org/cahi_contents/resources/pdf/MandatesintheStates2010.pdf (link is currently inactive).

Tip: For updated information on each state’s specific mandated benefits, go to http://www.cms.gov/cciio/resources/data-resources/ehb.html

Catastrophic Coverage	US
High-Risk Pool Programs	Yes=34

Source: The Kaiser Family Foundation, State High Risk Pool Programs and Enrollment, 2011. Data Source: Comprehensive Health Insurance for High-Risk Individuals: A State-by-State Analysis. National Association of State Comprehensive Health Insurance Plans, 26th Ed., 2012/2013. Available for order at www.naschip.org. Retrieved April 08, 2013 from http://statehealthfacts.org/comparetable.jsp?ind=602&cat;=7

EXPERIENCE WITH THE SYSTEM OF CARE FOR CSHCN

Federal MCHB Core Outcomes for CSHCN	US
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by primary household language
Hispanic child/English language household	65.6%
Non-Hispanic child	71.6%
Hispanic child/Spanish language household	59.5%

Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).

Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by household income
0-99% FPL	61.8%
100-199% FPL	67.3%
200-399% FPL	72.6%
400% or more FPL	77.2%

Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by number of functional difficulties
No difficulties	84.8%
1 difficulty	79.6%
2 difficulties	76.4%
3 difficulties	73.2%
4 or more difficulties	60.8%

Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by sex
Male	69.5%
Female	71.5%

Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by race/ethnicity
Hispanic	63.5%
White non-Hispanic	74.2%
Black non-Hispanic	64.7%
Other non-Hispanic	66.8%

Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health

70.3%

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by age groups
0-5 years	44.2%
6-11 years	42.1%
12-17 years	43.1%

Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by sex
Male	42.6%
Female	43.6%

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by race/ethnicity
Hispanic	33.2%
White non-Hispanic	48.8%
Black non-Hispanic	33.5%
Other non-Hispanic	39.1%

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by primary household language
Hispanic child/English language household	37.4%
Non-Hispanic child	44.9%
Hispanic child/Spanish language household	24.9%

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by household income
0-99% FPL	30.9%
100-199% FPL	37.5%
200-399% FPL	47.4%
400% or more FPL	52.2%

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by number of functional difficulties
No difficulties	64.1%
1 difficulty	58.3%
2 difficulties	53.3%
3 difficulties	43.2%
4 or more difficulties	28.9%

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home

43.0%

Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home.

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by age groups
0-5 years	63.2%
6-11 years	60.3%
12-17 years	59.4%

Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by sex
Male	60.2%
Female	61.0%

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by race/ethnicity
Hispanic	53.6%
White non-Hispanic	62.8%
Black non-Hispanic	58.9%
Other non-Hispanic	61.5%

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by primary household language
Hispanic child/Spanish language household	48.8%
Hispanic child/English language household	56.1%
Non-Hispanic child	61.9%

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by household income
0-99% FPL	57.8%
100-199% FPL	58.0%
200-399% FPL	58.5%
400% or more FPL	67.0%

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by number of functional difficulties
No difficulties	74.1%
1 difficulty	69.8%
2 difficulties	63.9%
3 difficulties	62.0%
4 or more difficulties	52.6%

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need

60.6%

Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need.

Percentage of CSHCN who are screened early and continuously for special health care needs, by age groups
0-5 years	64.8%
6-11 years	83.8%
12-17 years	80.6%

Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).

Percentage of CSHCN who are screened early and continuously for special health care needs, by sex
Male	78.5%
Female	78.8%

Percentage of CSHCN who are screened early and continuously for special health care needs, by race/ethnicity
Hispanic	74.9%
White non-Hispanic	79.6%
Black non-Hispanic	78.8%
Other non-Hispanic	78.7%

Percentage of CSHCN who are screened early and continuously for special health care needs, by primary household language
Hispanic child/English language household	80.3%
Non-Hispanic child	79.3%
Hispanic child/Spanish language household	64.3%

Percentage of CSHCN who are screened early and continuously for special health care needs, by household income
0-99% FPL	73.2%
100-199% FPL	75.0%
200-399% FPL	78.6%
400% or more FPL	85.8%

Percentage of CSHCN who are screened early and continuously for special health care needs, by number of functional difficulties
No difficulties	79.5%
1 difficulty	81.5%
2 difficulties	79.8%
3 difficulties	76.7%
4 or more difficulties	77.3%

Percentage of CSHCN who are screened early and continuously for special health care needs

78.6%

Percentage of CSHCN who can easily access community-based services, by age groups
0-5 years	65.9%
6-11 years	64.8%
12-17 years	65.0%

Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).

Percentage of CSHCN who can easily access community-based services, by sex
Male	65.4%
Female	64.7%

Percentage of CSHCN who can easily access community-based services, by race/ethnicity
Hispanic	59.2%
White non-Hispanic	67.6%
Black non-Hispanic	64.1%
Other non-Hispanic	60.8%

Percentage of CSHCN who can easily access community-based services, by primary household language
Hispanic child/English language household	60.2%
Non-Hispanic child	66.3%
Hispanic child/Spanish language household	57.3%

Percentage of CSHCN who can easily access community-based services, by household income
0-99% FPL	59.4%
100-199% FPL	59.2%
200-399% FPL	65.6%
400% or more FPL	74.0%

Percentage of CSHCN who can easily access community-based services, by number of functional difficulties
No difficulties	86.5%
1 difficulty	81.9%
2 difficulties	74.6%
3 difficulties	66.9%
4 or more difficulties	50.4%

Percentage of CSHCN who can easily access community-based services

65.1%

Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily.

Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by age groups
12-14 years	40.7%
15-17 years	39.4%

Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).

Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by sex
Male	37.1%
Female	43.8%

Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by race/ethnicity
Hispanic	25.3%
White non-Hispanic	45.7%
Black non-Hispanic	28.1%
Other non-Hispanic	40.2%

Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by primary household language
Hispanic child/English language household	31.6%
Non-Hispanic child	42.4%
Hispanic child/Spanish language household	12.4%

Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by household income
0-99% FPL	25.4%
100-199% FPL	31.0%
200-399% FPL	43.3%
400% or more FPL	52.2%

Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by number of functional difficulties
No difficulties	57.4%
1 difficulty	55.7%
2 difficulties	48.3%
3 difficulties	42.0%
4 or more difficulties	28.3%

Percentage of families who report their child’s doctors or other health care providers are sensitive to the family’s values and customs
Always	69.6%
Usually	19.3%
Sometimes or Never	11.1%

TITLE V PROGRAM

Financing	US
Percentage of Title V Block Grant Partnership Budget from State Funds	42.3%

Source: U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2014). Federal-State Title V Block Grant Partnership Budget FY 2014. Retrieved March 11, 2014 from https://mchdata.hrsa.gov/tvisreports/FinancialData/FinancialSearch.aspx?FinSearch=A

Family Involvement	US
Family Participation in Title V CYSHCN Program Score (Maximum Possible = 18)	14.2

Source: U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2014). Characteristics Documenting Family Participation in Children with Special Health Care Needs Programs, Annual Report Year 2012. Retrieved March 7, 2014 from https://mchdata.hrsa.gov/tvisreports/ProgramData/CshcnFamParticCharac.aspx

* Estimates based on sample sizes too small to meet standards for reliability or precision.

SEE STATE DATA

COMPARE TWO STATES

TIPS FOR USING THE DATA

DATA SOURCES

State-at-a-Glance Coverage and Financing Charts

DEMOGRAPHICS

Child Population

Race/Ethnicity

Household

Urban/Rural

Special Health Care Needs

Low Birth Weight

Special Education

ECONOMICS

Income

Unemployment

Financial Impact of Caregiving

Employer Size

Employer-Sponsored Health Insurance

Medicaid Eligibility

Federal Match for Medicaid

Education Expenditures

CHILD HEALTH SERVICES

Health Care

Early Intervention Eligibility

Mental Health

Oral Health

Foster Care

FACTORS INFLUENCING HEALTH INSURANCE COVERAGE

Uninsured

Underinsured

Private Insurance Coverage

Public Coverage: Medicaid, CHIP and SSI

Dual Public and Private Coverage

Health Care Reform

State Mandated Insurance Benefits (for private ins

Catastrophic Coverage

EXPERIENCE WITH THE SYSTEM OF CARE FOR CSHCN

Federal MCHB Core Outcomes for CSHCN

TITLE V PROGRAM

Financing

Family Involvement