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TIPS FOR USING THE DATA

How to interpret and use the data accurately

DATA SOURCES

Where the data comes from: full sources and methods.

State-at-a-Glance Coverage and Financing Charts

Entire US

DEMOGRAPHICS

Child Population

 US
Number of children 78,118,600
Children as a percentage of the total population 25%
Source: Kaiser Family Foundation (2014)

Race/Ethnicity

 US
Percentage of children, by race/ethnicity
White alone 53.5%
Black/African American alone 14.0%
Hispanic/Latino alone 26.9%
American Indian/Alaska Native alone 0.9%
Asian alone 4.3%
Native Hawaiian/Other Pacific Islander alone 0.2%
Another race/ethnicity alone 0.3%
2 or more races/ethnicities 3.8%
Source: U.S. Census Bureau (2010)

Household

 US
Among households with children, percentage of households with one, two, or three or more adults
1 adult 14.9 %
2 adults 63.4 %
3 or more adults 21.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Urban/Rural

 US
Percentage of population living in urban areas 85%
Source: Kaiser Family Foundation (2013)

Special Health Care Needs

 US
Percentage of children with reported special health care needs, by age group
0-5 9.3%
6-11 17.7%
12-17 18.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of children with reported special health care needs, by sex
Male 17.4%
Female 12.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of children with reported special health care needs, by race/ethnicity
Hispanic 11.2%
White, non-Hispanic 16.3%
Black, non-Hispanic 17.5%
Other, non-Hispanic 13.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of children with reported special health care needs, by primary household language
Hispanic child/ Spanish language household 8.2%
Hispanic child/ English language household 14.4%
Non-Hispanic child 16.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of children with reported special health care needs, by household income
0-99% FPL 16.0%
100-199% FPL 15.4%
200-399% FPL 14.5%
400% or more FPL 14.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of households with one or more children with special health care needs 23.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

Low Birth Weight

 US
Percentage of live births that are low birth weight 8.2%
Source: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2012)

Special Education

 US
Percentage of public school students enrolled in Special Education 13.1
Source: U.S. Dept. of Education (2011)

ECONOMICS

Income

 US
Median annual household income $53,657
Source: Kaiser Family Foundation (2014)
Percentage of children in families with income below 200% of the federal poverty level 42.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CSHCN in families with income below 200% of the federal poverty level 44.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Unemployment

 US
Unemployment rate 5.9%
Source: Kaiser Family Foundation (2013)

Financial Impact of Caregiving

 US
Percentage of families who report they have reduced work hours or stopped working to care for their CYSHCN 25.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Employer Size

 US
Distribution of employers, by number of employees
<20 89.6%
20-99 8.6%
100+ 1.8%
Source: U.S. Census Bureau (2012)

Employer-Sponsored Health Insurance

 US
Percentage of private sector employers offering health insurance 50.1%
Source: Kaiser Family Foundation (2012)
Percentage of private sector employers offering health insurance, by number of employees
<50 35.2%
50+ 95.9%
Source: Kaiser Family Foundation (2012)

Medicaid Eligibility

 US
Maximum allowed income for Medicaid enrollment, as a percentage of the federal poverty level, compared to the federal minimum requirement
Pregnant women Required minimum: 185%
Children, aged 0-1 Required minimum: 138%
Children, aged 1-5 Required mimimum: 138%
Children, aged 6-18 Required minimum: 138%
Source: Kaiser Family Foundation (2015)

Tip: Children’s Medicaid eligibility includes Title XXI CHIP funding for states that expanded Medicaid with CHIP funds.

Federal Match for Medicaid

 US
Federal Medical Assistance Percentage (FMAP) 50.00%
Source: Kaiser Family Foundation (2016)

Tip: The Kaiser Family Foundation website defaults to the FY 2017 FMAP. Use the drop down box under TIMEFRAME to select FY 2016 FMAP.

Education Expenditures

 US
Combined local, state and federal per pupil education expenditures $11,339
Source: U.S. Dept. of Education (2011)
Federal per pupil IDEA expenditures for children aged 3-21 in Special Education $1,774
Source: U.S. Dept. of Education, Office of Special Education and Rehabilitative Services (2010)

CHILD HEALTH SERVICES

Health Care

 US
Number of children’s hospitals 245
Source: Children’s Hospital Association
Number of pediatricians per 1,000 children 1.14
Source: American Board of Medical Specialties (2013-2014)
Number of family practitioners 85,279
Source: American Board of Medical Specialties (2013-2014)
Number of child and adolescent psychiatrists per 1,000 children 0.075
Source: American Board of Medical Specialties (2013-2014)

Early Intervention Eligibility

 US
Eligibility for Early Intervention services includes infants and toddlers “at risk” of developmental delay Yes=5
Source: Early Childhood Technical Assistance Center (2012)

Mental Health

 US
Percentage of children served by the state mental health agency
Aged 0-12 15.4%
Aged 13-17 11.9%
Aged 18-20 4.6%
Source: SAMHSA National Mental Health Information Center (2014)
Percentage of CSHCN with emotional, behavioral or developmental issues whose families have adequate private and/or public insurance to pay for the services they need 59.10%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Oral Health

 US
Percentage of children receiving preventive dental care in the past year 77.2%
Source: National Survey of Children’s Health (2011-2012)
Percentage of CSHCN receiving preventive dental care in the past year 83.1%
Source: National Survey of Children’s Health (2011-2012)
Percentage of children with teeth in excellent or very good condition 71.3%
Source: National Survey of Children’s Health (2011-2012)
Percentage of CSHCN with teeth in excellent or very good condition 64.9%
Source: National Survey of Children’s Health (2011-2012)

Foster Care

 US
Number of children in foster care 402,378
Source: U.S. Dept. of Health and Human Services, Administration for Children and Families, Children’s Bureau (2014)
Percentage of children in foster care 0.5%
Source: U.S. Dept. of Health and Human Services, Administration for Children and Families, Children’s Bureau (2014)

FACTORS INFLUENCING HEALTH INSURANCE COVERAGE

Uninsured

 US
Percentage of children without health insurance at some point in the past year 11.3%
Source: National Survey of Children’s Health (2011-2012)
Percentage of CYSHCN without health insurance at some point in the past year, by age groups
0-5 years 9.1%
6-11 years 9.2%
12-17 years 9.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by sex
Male 9.5%
Female 8.9%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by race/ethnicity
Hispanic 15.9%
White non-Hispanic 7.3%
Black non-Hispanic 9.9%
Other non-Hispanic 9.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by primary household language
Hispanic child/Spanish language household 22.2%
Hispanic child/English language household 12.6%
Non-Hispanic child 8.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by household income
0-99% FPL 14.2%
100-199% FPL 14.1%
200-399% FPL 8.5%
400% or more FPL 2.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year, by number of functional difficulties
No difficulties 4.4%
1 difficulty 5.9%
2 difficulties 9.0%
3 difficulties 9.9%
4 or more difficulties 11.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN without health insurance at some point in the past year 9.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

Underinsured

 US
Percentage of children with inadequate health care coverage 23.5%
Source: National Survey of Children’s Health (2011-2012)
Percentage of CYSHCN with inadequate health care coverage, by age groups
0-5 years 31.6%
6-11 years 34.6%
12-17 years 35.5%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by sex
Male 34.5%
Female 34.1%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by race/ethnicity
Hispanic 37.9%
White non-Hispanic 33.0%
Black non-Hispanic 35.9%
Other non-Hispanic 33.9%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by primary household language
Hispanic child/Spanish language household 39.9%
Hispanic child/English language household 37.0%
Non-Hispanic child 33.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by household income
0-99% FPL 34.3%
100-199% FPL 34.3%
200-399% FPL 36.9%
400% or more FPL 31.9%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage, by number of functional difficulties
No difficulties 23.2%
1 difficulty 26.5%
2 difficulties 30.7%
3 difficulties 32.6%
4 or more difficulties 41.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with inadequate health care coverage 34.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Tip: Relatively few CYSHCN lack insurance completely. However, private coverage is often too limited to meet their health needs, Thus, in many states, underinsurance is the major financial barrier to health care access for CYSHCN.

*Estimates based on sample sizes too small to meet standards for reliability or precision.

Private Insurance Coverage

 US
Percentage of children with private health insurance coverage 57.4%
Source: National Survey of Children’s Health (2011-2012)
Percentage of CYSHCN with private health insurance coverage, by age groups
0-5 years 46.1%
6-11 years 51.4%
12-17 years 56.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by sex
Male 51.9%
Female 53.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by race/ethnicity
Hispanic 35.7%
White non-Hispanic 63.4%
Black non-Hispanic 30.6%
Other non-Hispanic 49.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by primary household language
Hispanic child/Spanish language household 15.9%
Hispanic child/English language household 46.1%
Non-Hispanic child 55.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by household income
0-99% FPL 5.9%
100-199% FPL 27.7%
200-399% FPL 71.8%
400% or more FPL 90.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage, by number of functional difficulties
No difficulties 74.7%
1 difficulty 68.9%
2 difficulties 61.6%
3 difficulties 52.2%
4 or more difficulties 38.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with private health insurance coverage 52.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

Public Coverage: Medicaid, CHIP and SSI

 US
Number of children enrolled in Medicaid 32,931,900
Tip: Because 2011 data were unavailable, 2010 data was used for Florida, Kansas, Maine, Maryland, Montana, New Mexico, New Jersey, Oklahoma, Texas, and Utah.
Percentage of Medicaid enrollees who are children 48%
Source: Kaiser Family Foundation (2012)
Percentage of children enrolled in Medicaid or CHIP 37.1%
Source: National Survey of Children’s Health (2011-2012)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by age groups
0-5 years 41.2%
6-11 years 36.9%
12-17 years 32.1%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by sex
Male 36.1%
Female 35.5%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by race/ethnicity
Hispanic 46.4%
White non-Hispanic 27.0%
Black non-Hispanic 56.0%
Other non-Hispanic 37.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by primary household language
Hispanic child/English language household 40.6%
Non-Hispanic child 33.7%
Hispanic child/Spanish language household 57.5%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by household income
0-99% FPL 77.9%
100-199% FPL 55.9%
200-399% FPL 17.2%
400% or more FPL 4.5%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP, by number of functional difficulties
No difficulties 19.5%
1 difficulty 24.0%
2 difficulties 29.0%*
3 difficulties 36.6%
4 or more difficulties 45.9%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN enrolled in Medicaid or CHIP 35.9%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.
Maximum allowed income for CHIP eligibility as a percentage of the FPL N/A
Source: Kaiser Family Foundation (2015)
Tip: MAGI Adjusted
Number of children enrolled in CHIP 8,129,426
Source: Kaiser Family Foundation (2014)
Tip: Accounts for churn
Percentage of children enrolled in CHIP 10.4%
Source: Kaiser Family Foundation (2014)
Number of children enrolled in Supplemental Security Income (SSI) 1,321,681
Source: Kaiser Family Foundation (2011)
Percentage of children enrolled in Supplemental Security Income (SSI) 1.8%
Source: Kaiser Family Foundation (2013) and U.S. Census Bureau (2010)
TEFRA Medicaid state plan option/Katie Beckett waiver for children Yes=23
Source: American Journal of Law and Medicine (2011)
Premium Assistance Programs Yes= 36
Source: Employee Benefits Security Administration (2014)

Dual Public and Private Coverage

 US
Percentage of CYSHCN with a combination of public and private health insurance, by sex
Male 8.4%
Female 7.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by race/ethnicity
Hispanic 11.1%
White non-Hispanic 6.9%
Black non-Hispanic 9.7%
Other non-Hispanic 3.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by age groups
0-5 years 9.7%
6-11 years 8.4%
12-17 years 7.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by household income
0-99% FPL 11.1%
100-199% FPL 11.1%
200-399% FPL 7.1%
400% or more FPL 4.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by number of functional difficulties
No difficulties 4.3%
1 difficulty 4.7%
2 difficulties 5.9%
3 difficulties 7.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance, by primary household language
Hispanic child/English language household 8.1%
Non-Hispanic child 7.6%
Hispanic child/Spanish language household 16.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Percentage of CYSHCN with a combination of public and private health insurance 8.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Tip: Dual coverage is an option in states which permit privately insured families to enroll their children in Medicaid in order to receive supplemental coverage, sometimes known as “wrap-around” coverage. This type of secondary Medicaid enrollment may be offered free or through the payment of premiums based on a sliding scale. Dual coverage helps address underinsurance, which is a significant problem for many privately insured CYSHCN whose coverage is too limited to meet their health needs.

*Estimates based on sample sizes too small to meet standards for reliability or precision.

Health Care Reform

 US
Exchange overview
Exchange decision State run=17; State/fed partnership=7; Fed run=27
Type of exchange N/A
Source: Kaiser Family Foundation (2014)
Tip: The term Health Insurance “Exchange” is also used interchangeably with Health Insurance “Marketplace.”
Recommended benchmark plan N/A
Source: Center for Consumer Information and Insurance Oversight (2012)
Plan type N/A
Source: National Academy for State Health Policy (2014)
Approved Section 2703 Health Home State Plan Amendments (SPAs)
Approved SPA Yes= 20; No= 31
Target population N/A
Geographic area N/A
Source: Kaiser Family Foundation (2015)

State Mandated Insurance Benefits (for private ins

 US
Autism Yes=35
Source: Autism Speaks (2014)
Bone Marrow Transplants Yes=9
Cleft Palate Yes=17
Congenital Bleeding Disorders Yes=3
Dental Anesthesia Yes=31
Diabetes Self-Management Yes=38
Diabetic Supplies Yes=47
Source: Center for Affordable Health Insurance (2010)
Early Intervention Yes=9
Source: Catalyst Center communications with state agency contacts and review of state statutes (2011)
Emergency Services Yes=45
Hearing Aids Yes=17
Home Health Care Yes=20
Hospice Care Yes=12
Kidney Disease Treatment Yes=2
Mental Health, General Yes=42
Source: Center for Affordable Health Insurance (2010)
Mental Health Parity Yes=23
Source: National Conference of State Legislatures (2014)
Neurodevelopment Therapy Yes=1
Newborn Hearing Screening Yes=18
Newborn Sickle-Cell Testing Yes=4
PKU/Formula Yes=33
Prescription Drugs Yes=4
Rehabilitation Services Yes=6
Telemedicine Yes=9
Source: Center for Affordable Health Insurance (2010)

Tip: For updated information on each state’s specific mandated benefits, go to http://www.cms.gov/cciio/resources/data-resources/ehb.html

Catastrophic Coverage

 US
High-Risk Pool Programs Yes=34
Source: Kaiser Family Foundation (2011)

EXPERIENCE WITH THE SYSTEM OF CARE FOR CSHCN

Federal MCHB Core Outcomes for CSHCN

 US
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by primary household language
Hispanic child/English language household 65.6%
Non-Hispanic child 71.6%
Hispanic child/Spanish language household 59.5%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by household income
0-99% FPL 61.8%
100-199% FPL 67.3%
200-399% FPL 72.6%
400% or more FPL 77.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by number of functional difficulties
No difficulties 84.8%
1 difficulty 79.6%
2 difficulties 76.4%
3 difficulties 73.2%
4 or more difficulties 60.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by sex
Male 69.5%
Female 71.5%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health, by race/ethnicity
Hispanic 63.5%
White non-Hispanic 74.2%
Black non-Hispanic 64.7%
Other non-Hispanic 66.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive (outcome successfully achieved).
Percentage of CSHCN whose families are partners in shared decision-making for child’s optimal health 70.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner in decision-making at all levels and are satisfied with the services they receive.
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by age groups
0-5 years 44.2%
6-11 years 42.1%
12-17 years 43.1%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by sex
Male 42.6%
Female 43.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by race/ethnicity
Hispanic 33.2%
White non-Hispanic 48.8%
Black non-Hispanic 33.5%
Other non-Hispanic 39.1%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by primary household language
Hispanic child/English language household 37.4%
Non-Hispanic child 44.9%
Hispanic child/Spanish language household 24.9%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by household income
0-99% FPL 30.9%
100-199% FPL 37.5%
200-399% FPL 47.4%
400% or more FPL 52.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, by number of functional difficulties
No difficulties 64.1%
1 difficulty 58.3%
2 difficulties 53.3%
3 difficulties 43.2%
4 or more difficulties 28.9%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home (outcome successfully achieved).
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home 43.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated, ongoing, comprehensive care within a medical home.
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by age groups
0-5 years 63.2%
6-11 years 60.3%
12-17 years 59.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by sex
Male 60.2%
Female 61.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by race/ethnicity
Hispanic 53.6%
White non-Hispanic 62.8%
Black non-Hispanic 58.9%
Other non-Hispanic 61.5%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by primary household language
Hispanic child/Spanish language household 48.8%
Hispanic child/English language household 56.1%
Non-Hispanic child 61.9%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by household income
0-99% FPL 57.8%
100-199% FPL 58.0%
200-399% FPL 58.5%
400% or more FPL 67.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need, by number of functional difficulties
No difficulties 74.1%
1 difficulty 69.8%
2 difficulties 63.9%
3 difficulties 62.0%
4 or more difficulties 52.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need (outcome successfully achieved).
Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to pay for the services they need 60.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families have adequate private and/or public insurance to pay for the services they need.
Percentage of CSHCN who are screened early and continuously for special health care needs, by age groups
0-5 years 64.8%
6-11 years 83.8%
12-17 years 80.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by sex
Male 78.5%
Female 78.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by race/ethnicity
Hispanic 74.9%
White non-Hispanic 79.6%
Black non-Hispanic 78.8%
Other non-Hispanic 78.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by primary household language
Hispanic child/English language household 80.3%
Non-Hispanic child 79.3%
Hispanic child/Spanish language household 64.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by household income
0-99% FPL 73.2%
100-199% FPL 75.0%
200-399% FPL 78.6%
400% or more FPL 85.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs, by number of functional difficulties
No difficulties 79.5%
1 difficulty 81.5%
2 difficulties 79.8%
3 difficulties 76.7%
4 or more difficulties 77.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs (outcome successfully achieved).
Percentage of CSHCN who are screened early and continuously for special health care needs 78.6%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timely follow up to definitive diagnosis and clinical management for condition(s) mandated by their State-sponsored newborn screening programs.
Percentage of CSHCN who can easily access community-based services, by age groups
0-5 years 65.9%
6-11 years 64.8%
12-17 years 65.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by sex
Male 65.4%
Female 64.7%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by race/ethnicity
Hispanic 59.2%
White non-Hispanic 67.6%
Black non-Hispanic 64.1%
Other non-Hispanic 60.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by primary household language
Hispanic child/English language household 60.2%
Non-Hispanic child 66.3%
Hispanic child/Spanish language household 57.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by household income
0-99% FPL 59.4%
100-199% FPL 59.2%
200-399% FPL 65.6%
400% or more FPL 74.0%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services, by number of functional difficulties
No difficulties 86.5%
1 difficulty 81.9%
2 difficulties 74.6%
3 difficulties 66.9%
4 or more difficulties 50.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily (outcome successfully achieved).
Percentage of CSHCN who can easily access community-based services 65.1%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report that community-based service systems are organized so they can use them easily.
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by age groups
12-14 years 40.7%
15-17 years 39.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by sex
Male 37.1%
Female 43.8%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by race/ethnicity
Hispanic 25.3%
White non-Hispanic 45.7%
Black non-Hispanic 28.1%
Other non-Hispanic 40.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by primary household language
Hispanic child/English language household 31.6%
Non-Hispanic child 42.4%
Hispanic child/Spanish language household 12.4%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by household income
0-99% FPL 25.4%
100-199% FPL 31.0%
200-399% FPL 43.3%
400% or more FPL 52.2%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence — CSHCN ages 12-17 only, by number of functional difficulties
No difficulties 57.4%
1 difficulty 55.7%
2 difficulties 48.3%
3 difficulties 42.0%
4 or more difficulties 28.3%
Source: National Survey of Children with Special Health Care Needs (2009-2010)
Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs who received the services necessary to make transitions to all aspects of adult life, including adult health care, work, and independence (outcome successfully achieved).
Percentage of families who report their child’s doctors or other health care providers are sensitive to the family’s values and customs
Always 69.6%
Usually 19.3%
Sometimes or Never 11.1%
Source: National Survey of Children with Special Health Care Needs (2009-2010)

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

TITLE V PROGRAM

Financing

 US
Percentage of Title V Block Grant Partnership Budget from State Funds 45.3%
Source: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2015)

Family Involvement

 US
Family Participation in Title V CYSHCN Program Score (Maximum Possible = 18) 13.9
Source: U.S. Dept. of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2015)

* Estimates based on sample sizes too small to meet standards for reliability or precision.