Use the directory below to find links to other resources pertaining to the improvement of financing of care for children and youth with special health needs.

• MCHB-funded National Centers
• General Maternal and Child Health Topics
• Quality Resources
• Research and Public Policy Resources
• Health Insurance and Resources
• Public Benefit Programs (Medicaid, SCHIP, Title V) Resources
• Healthcare Financing Advocacy/Legal Aid Resources at the National Level
• Healthcare Insurance and Financing Resources at the State Level

Healthcare Insurance and Financing Resources at the State Level

The ARC – State Chapters

The ARC advocates for the rights and full participation of all children and adults with intellectual and developmental disabilities.

Association of University Centers on Disabilities (AUCD)

AUCD promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC).

F2F HICs are federally funded family-run centers established to assist families of children with special health care needs to make informed choices about health care in order to promote good treatment decisions, cost effectiveness, and improved health outcomes.

Kaiser Statehealthfacts.org

Kaiser Statehealthfacts.org is designed to provide free, up-to-date, and easy-to-use health data on all 50 states.

National Disability Rights Network (NDRN)

NDRN is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. Collectively, the P&A/CAP network is the largest provider of legally based advocacy services to people with disabilities in the United States.

National Dissemination Center for Children with Disabilities (NICHCY) – State Resources

NICHCY compiles disability-related resources in each state, and creates State Resource Sheets.

Southern Institute on Children and Families

The Southern Institute on Children and Families works to improve opportunities for children and families in the South, with a focus on disadvantaged children.

Click on the state abbreviation to view state resources

AL | AK |AZ| AR| CA| CO| CT| DE| DC| FL| GA| HI| ID| IL| IN| IA| KS| KY| LA| ME| MD| MA| MI| MN| MS| MO| MT| NE| NV| NH| NJ| NM| NY| NC| ND| OH| OK| OR| PA| RI| SC| SD| TN| TX| UT| VT| VA| WA| WV| WI| WY

Alabama

Family Voices of Alabama

Family Voices in Alabama provides individualized information and support and other state specific resources.

Parents as Partners of Alabama

Parents as Partners of Alabama operates a parent training and information center (PTI) and a Parent Information Resource Center (PIRC).

Alaska

Stone Soup Group On-Line Resource Guide

Stone Soup Group is a Family-to-Family Health Information Center. It offers resources to help families with the cost of meeting their child’s special needs in Alaska.

Parents Inc.

Families Assisting Families of Children with Disabilities in Alaska is a partnership of Alaska families of children disabilities that provides support, training resources, and advocacy statewide.

Arizona

Pilot Parents of Southern Arizona

Pilot Parents of Southern Arizona provides a wide variety of programs and services that support families of children with disabilities such as peer to peer support, parent training and information, books and videos addressing disabilities and related topics available for parent and professional checkout and a quarterly newsletter.

Raising Special Kids

One of 100 PTI (Parent Training and Information) Centers in U.S. Serving Central and Northern Arizona. We support families whose children have disabilities and health care needs.

Arkansas

Arkansas Disability Coalition

Arkansas Disability Coalition works for equal rights and opportunity for Arkansans with disabilities through public policy change, cross-disability collaboration, and the empowerment of people with disabilities and their families.

Family Voices of Arkansas

Family Voices of Arkansas provides information and assistance to families and professionals through: conferences, support groups, parent-matching, listservs, newsletters, and resource guides.

Partners for Inclusive Communities

Partners for Inclusive Communities conducts research and provides education, training, technical assistance, information, and services to people with disabilities, their families, students and professionals involved with disability related programs.

California

The California Endowment

California Health Care Foundation (CHCF)

CHCF is an independent philanthropy committed to improving the way health care is delivered and financed in California, and helping consumers make informed health care and coverage decisions.

The Family Resource Center (FRC)

FRC at Exceptional Parents Unlimited in California is a place for parents of children with disabilities. The FRC provides parents and the community with many services.

Family Voices of California

Family Voices of California is a statewide grassroots clearinghouse for information and education about ways to assure and improve health care for children with disabilities and chronic conditions.

Loving Your Disabled Child

Loving Your Disabled Child provides parents and families of children with disabilities emotional, educational, and spiritual support.

Matrix

Matrix offers emotional support to parents, information on a vast array of topics about disabilities and related areas, referral to appropriate services and training workshops to provide parents with the skills they need to build life-affirming confidence and effectiveness to guide their children throughout life.

Parents Helping Parents

Parents Helping Parents provides an array of services to parents of CSHCN that includes: Parent to Parent Support, Peer Counseling, Support and Information Groups, Integrated Playgroups, Information and Referral & Guidance.

Support for Families of Children with Disabilities (SFCD)

SHCD has offered information, education, and parent-to-parent support free of charge to families of children with any kind of disability or special health care need in San Francisco

Colorado

Coalition for the Medically Underserved

This organization provides a forum for healthcare discussion and has provided a comprehensive list of forty
three organizations that help the medically underserved.

Family Voices of Colorado at CP of CO

Family Voices Colorado provides information referral, advocacy support information, private health insurance advocacy, training and policy work to ensure that children's health is addressed amidst change in public and private health care systems.

JFK Partners

JFK Partners promotes the independence, inclusion, contribution, health, and well-being of people with developmental disabilities and special health care needs and their families through consumer, community, and university partnerships.

Parent to Parent of Colorado (P2P-CO)

P2P-CO is a parent initiated, parent controlled, organized group that builds inclusive communities, takes effective and constructive group action, and supports each other on the journey of parenting our sons and daughters with special health care needs or disabilities.

PEAK Parent Center

PEAK Parent Center is Colorado's Parent Training and Information Center. PEAK is a statewide
organization of parents of children with disabilities reaching out to assist other parents and professionals.

Connecticut

Connecticut Parent Advocacy Center (CPAC)

CPAC is a statewide nonprofit organization that offers information and support to families of children with any disability or chronic illness, age birth through 21.

Family Voices of Connecticut

Family Voices of Connecticut engages families in a number of ways to promote quality of health care services for CYSHCN.

Parents Available to Help (PATH)

PATH is a network of families providing informational and emotional support to others who have a child with developmental or health related needs.

UConn Center on Disabilities

Family-to-Family Health Information Centers. Helping families of
children and youth with special health care needs and the professionals
who serve them.

Delaware

Family Voices of Delaware

Family Voices of Delaware assists families of CYSHCN and the professionals who serve them through: direct information and referral, parent matching, support groups, conferences, topical calls, resource guides, listserves, newsletters, and surveys.

Parent Information Center of Delaware

Parent Information Center of Delaware is a statewide nonprofit organization dedicated to providing information,support and learning opportunities to students and to families who have children with disabilities or special needs. We strive to promote partnerships between families, educators, policy makers and the community.

University of Delaware Center for Disabilities Studies

The mission of the Center for Disabilities Studies is to enhance the lives of individuals and families in Delaware through education, prevention, service, and research related to disabilities.

D.C.

Family Voices of DC

Family Voices of DC (FV of DC) provides information and support to families of CYSHCN and the professionals who serve them in several ways: direct support, parent matching, training, focus groups, topical calls, listservs and conferences.

Health Services for Children with Special Health Care Needs

HSCSN/NET is an innovative care management network coordinating health, social, and education services for the pediatric Supplemental Security Income and SSI-eligible populations of Washington, DC.

Florida

Family Network on Disabilities of Florida, Inc

Family Network on Disabilities of Florida, Incis a statewide network of families and individuals who may be at-risk, have disabilities, or have special needs. Our mission is to ensure through collaboration that Floridians have full access to family-driven support, education, information, resources and advocacy.

Florida Institute for Family Involvement (FIFI)

FIFI is a family organized and directed project that focuses on four major goals: Promoting partnerships between FIFI and policy-makers and service providers, The development of a statewide family organization networks,
Sharing information, and The identification and support of new and existing family leaders.

Parent to Parent of Miami, Inc

Parent to Parent of Miami, Inc provides information, educational training, support, and emergency assistance, to families who have children and adults with disabilities and/or special needs.

Georgia

Family Voices of Georgia

Family Voices of Georgia advocates for families of CYSHCN through a number of activities: parent matching, training, focus groups, support groups, conferences, resource guides, listservs, website, newsletters, and surveys.

Fragile Kids Foundation

Fragile Kids Foundation serves Georgia’s medically fragile children through three focused programs.

Parents Educating Parents & Professionals, Inc

Parents Educating Parents & Professionals, Inc is dedicated to improving the quality of life dream for all families of children, youth, and adults with disabilities.

Parent to Parent of Georgia

Parent to Parent of Georgia provides support and information to parents of children with disabilities.

Hawaii

Family Voices of Hawaii

Family Voices of Hawai‘i helps families and professionals work together to improve health care for CYSHCN in Hawai‘i by providing individual support, training, focus groups, surveys, conferences, and resource guides.

Hilopa'a Family to Family Health Information Center

Hilopa'a is a Family to Family Health Information Center providing information and referral, consultation and training to families of children and youth with special health care needs and their professional partners across the country.

Special Parent Information Network (SPIN)

SPIN is a parent to parent organization in Hawaii that provides information, support and referral to parents of children and young adults with disabilities and the professionals who serve them.

Idaho

Families Together

Families Together provides families with resources and supports that build and maintain strong, healthy, informed, and actively involved family members who can work together to improve the life long outcomes for their child or their sibling with a disability.

Idaho Parents Unlimited (IPUL)

IPUL is a statewide organization founded to provide support, information and technical assistance to parents of children and youth with disabilities

Illinois

The Arc of Illinois

The Arc of Illinois is a statewide health information resource for families of
children and youth with special needs.

Family Matters Parent Training & Information Center

Family Matters Parent Training & Information Center can assist you to learn about early intervention services for children from birth to three years of age, can inform you about special education services for school aged children, can help with transition issues for students who will be leaving the educational system and are preparing for the world of work or adult services, and can provide information about resources, best practices, specific disabilities, parent to parent connections, and training opportunities and conferences.

Family Resource Center on Disabilities (FRCD)

FRCD is a coalition of Illinois parents and professional organizations working to improve services for all children with disabilities.

Indiana

About Special Kids, Inc

A.S.K. is place for families and professionals in Indiana to go to “ASK” questions about children with special needs and to access information and resources about a variety of topics such as health insurance, special education, community resources and medical homes.

Family Voices of Indiana

Family Voices of Indiana provides assistance to families of CYSHCN in a many ways: direct support, conferences, focus groups, support groups, parent matching, training and topical calls, printed materials, listservs and a library/lending program.

Indiana Parent Information Network (IPIN)

IPIN provides information on local, state and national resources given by phone and mail to answer questions about disabilities, laws, health, education and social services.

Indiana Resource Center for Families with Special Needs

Indiana Resource Center for Families with Special Needs provides parents, families, and service providers in Indiana with the information and training necessary to help assure effective educational programs and appropriate services for children and young adults with disabilities.

Iowa

ASK Family Resource Center

The ASK Family Resource Cente is an exciting new concept; a "one-stop-shop" for children and adults with disabilities and their families.

Iowa COMPASS

Iowa COMPASS is Iowa's free, statewide information and referral service for people with disabilities, their families, service providers, and other members of the community.

Kansas

Families Together, Inc

Families Together, Inc is a parent training and information center (PTI) serving families in Kansas with a son or daughter with a disability

Family Voices of Kansas

Family Voices of Kansas and Families Together collaborate to help families of CYSHCN and the professionals who serve them by providing: individualized information and support, training, focus and support groups, parent matching, listservs, newsletters, and conferences.

Kentucky

Family Voices of Kentucky

Family Voices of Kentucky offers the family perspective in Title V policy discussions and through participation in state-level committees, and provides information and support to families through individual interaction and listserv discussion.

Kentucky Special Parent Involvement Network (KY-SPIN, Inc)

KY-SPIN aims to empower and support individuals with disabilities and their families to effectively advocate for and access needed information, resources and support networks in order to enhance the quality of their lives.

Louisiana

Bayou Land Families Helping Families

They provide information and referral, education and training and peer to peer support to individuals with disabilities or special needs and their families.

Families Helping Families of Louisiana Centers

Families Helping Families of Louisiana Centersare a group of families who are committed to reaching
out to other families who have members with special needs.

Family Voices of Louisiana

Family Voices of Louisiana offers support and information to families of CYSHCN in a variety of ways.

Louisiana Disability Resource Center

Louisiana Disability Resource Center is a one-stop portal for sites to provide information and/or services about disability issues in the state of Louisiana.

Project PROMPT

Project PROMPT provides a variety of workshops to parents of children with special needs.

Maine

Maine CITE

Maine CITE is a statewide project designed to help make assistive and universally designed technology more available to Maine children and adults who have disabilities.

Maine Parent Foundation

The Maine Parent Federation, Inc. is a statewide organization that provides information, advocacy, education, and training to benefit all children. We promote individual aspirations and community inclusion for people with
disabilities.

Maryland

Family Voices of Maryland

Maryland Family Voices provides assistance to families in many ways, including individual information and referral, parent matching, advocacy, training, and leadership skills development.

Kennedy Krieger Institute

Kennedy Krieger Institute is an internationally recognized facility located in Baltimore, Maryland dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training.

Parents' Place of Maryland

Parents' Place of Maryland provides education, information, technical assistance and supportive activities
for the parents of children with disabilities throughout Maryland.

Massachusetts

Alliance to Defend Health Care

Alliance to Defend Health Care is fulfilling its mission to achieve equal access to quality health care for all through a variety of advocacy and research projects. Massachusetts Health Care Advocacy Efforts

Federation for Children with Special Needs

The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families.

Health Care for All – Massachusetts

Institute for Community Inclusion

Family TIES of Massachusetts

Family TIES of Massachusetts is a statewide information and parent-to-parent support project for families of children with special needs and chronic illness.

Massachusetts Family Voices

This parent-run center provides free technical assistance to families with children and youth with special health needs, and others.

Practicing Comprehensive Care

A physician’s operations manual for implementing a medical home for children with special health care needs.

Michigan

Advocacy and Resource Center (ARC)

The ARC is committed to providing service, community education, and advocacy to ensure that persons with disabilities have the opportunity to develop their full potential and lead lives of dignity and purpose. The ARC is dedicated to improving the quality of life for persons with developmental disabilities.

Family Voices of Michigan

Family Voices of Michigan assist families navigate the health care systems for CYSHCN in Michigan through individual information and referral, focus groups, training, parent matching, conferences, topical calls, surveys, lending library, listserv, newsletters, and website.

HOPE Network

Hope Network is about helping people. We take seriously our mission to "enhance the dignity and independence of persons who have a disability and/or are disadvantaged."

Minnesota

Family Voices of Minnesota

Family Voices of Minnesota is a grass roots leadership network that promotes family centered care,parent professional collaboration and parent leadership and mentorship across systems and through out the state of Minnesota.

PACER Center

PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition
with 18 disability organizations.

Partners in Policymaking

Partners in Policymaking was created in Minnesota by the Governor's Council on Developmental Disabilities in 1987. Partners is an innovative, competency based leadership training program for adults with disabilities and parents of young children with developmental disabilities. The purpose of the program
is twofold: To teach best practices in disability, and the competencies of influencing public officials.

Mississippi

Family Voices of Mississippi

Family Voices of Mississippi Family Leaders volunteer their time and use personal resources to take calls from parents and other individuals with disabilities needing help.

The Institute for Disability Studies

 

The Institute for Disability Studies (IDS) is Mississippi's Center for Excellence in Developmental Disabilities Education, Research, and Service. Housed at The University of Southern Mississippi, IDS strives to meet its federal
mission to enhance the quality of life across the life span for citizens with disabilities and their families, regardless of culture, ethnicity, or socioeconomic background.

Missouri

Family Voices of Missouri, Inc.

Family Voices of Missouri, Inc. shares information and resources with families of CYSHCN and the professionals who serve them in a variety of ways.

Missouri Developmental Disabilities Resource Center

The Missouri Developmental Disability Resource Center (MODDRC) provides support if you want to become more informed, get connected, or find ways to volunteer.

Missouri Parents Act (MPACT)

MPACT is a statewide parent training and information center serving all disabilities. Their mission is to ensure that all children with special needs receive an education that allows them to achieve their personal goals.

Montana

Parents, Let's Unite for Kids

Provides information, support, training and assistance to aid children at home, school and as adults.

The University of Montana Rural Institute

The Rural Institute Center for Excellence in Disability Education, Research, and Service, is part of the national network of programs funded by the Federal Administration on Developmental Disabilities (ADD) committed to increasing and supporting the independence, productivity, and inclusion of persons with disabilities into the community.

Nebraska

Parent Training Initiatives (PTI) Nebraska

PTI Nebraska is a statewide resource for families of children with disabilities and special health care needs. The mission of PTI Nebraska is to provide training, information and support to parents in Nebraska who have a child
birth through twenty six with special needs. Resources are provided for parents, other family members, school personnel and interested others.

Answers4Families

The Answers4Families project (Nebraska Network for Children and Families) provides information, dialogue, education, and support to Nebraskans with special needs by providing Internet resources.

Nevada

Family TIES of Nevada

Family TIES provides one place for families in Nevada touched by disability or special healthcare conditions to become empowered to create visions for independent lives.

Parents Encouraging Parents (PEP)

Nevada's statewide parent information and training center for families who have children with disabilities. They offer information and referral, a lending library, quarterly newsletter, conflict resolution support, training
workshops, advocacy and mentor support and individual assistance.

New Hampshire

New Hampshire Family Voices

Resource for information about your child's special health care needs.

Parent to Parent of New Hampshire

Parent to Parent is a network of New Hampshire families willing to share experiences.

Parents Information Center

The Parent Information Center (PIC) is a recognized leader in building strong family/school partnerships. PIC provides information, support, and educational programs for parents, family members, educators, and the community. PIC is a pioneer in promoting effective parent involvement in the special education
process.

New Jersey

The Elizabeth M. Boggs Center on Developmental Disabilities

The Boggs Center provides community and student training and technical assistance, conducts research and model demonstrations, disseminates educational materials, and responds to requests for information.

The Family Support Center of New Jersey

The Family Support Center is a "One-Stop Shop" clearinghouse, offering you the most up-to-date information on all types of disabilities as well as national, state and local support programs and services for individuals and families seeking such information.

Statewide Parent Advocacy Network, Inc. (SPAN)

SPAN strives to provide the best support and training to families and professionals who need assistance and keep people informed about important events in education, health care, and all the other areas of life that impact on families of children with special health care needs and the professionals who work with
them.

New Mexico

Abrazos Family Support Services – Southwest Communication Resources

Abrazos provides a variety of specialized health and developmental services that support families to meet the special needs of their infants, children and adult family members. This includes: Developmental assessment and evaluation, Developmental intervention and service coordination,Case management for Medicaid eligible pregnant women and babies and Respite care. They serve families living in the central New Mexico communities of Bernalillo and Sandoval Counties.

Family Voices of New Mexico

Family Voices of New Mexico provides health information and supports families of CYSHCN and theprofessionals who serve them in many different ways: individualized support, parent matching, focus and support groups, conferences, training, resource guides, lending library, listserv, newsletters, and website.

Parents Reaching Out

Parents Reaching Out is a statewide non-profit organization that works with parents, caregivers, educators and other professionals to promote healthy, positive and caring experiences for New Mexico families and children.

New York

The Children's Evaluation and Rehabilitation Center at the Rose F. Kennedy University Center For Excellence In Developmental Disabilities

The Children's Evaluation and Rehabilitation Center (CERC) at the Albert Einstein College of Medicine provides a broad spectrum of clinical services for infants, children, adolescents and, despite its name, adults, with problems that include physical, developmental, language and learning disabilities.

Community Service Society of New York

Family Voices of New York

Family Voices of New York provides information and resources to families of CYSHCN and the professionals who work with them through individual information and referrals, parent matching, conferences and sharing of materials including care notebooks and resource guides.

Health Care Choices

Health Care Choices is a New York not-for-profit corporation dedicated to educating the public about the nation's health care system.

Parent to Parent of New York State

Parent to Parent of New York State is a statewide organization known for supporting families of individuals with special needs.

Resources for Children with Special Needs, Inc

Resources for Children with Special Needs, Inc provides information and referral, case management and support, individual and systemic advocacy, parent and professional training, library and information services to New York City parents and caregivers of children with disabilities and special needs and to the professionals who work with them.

Sinergia

Sinergia provides service coordination, information, and support to families and individuals in need. Second, it provides families and individuals with the means of self-empowerment, ultimately enabling them to become their
own advocates and directly assist other families.

North Carolina

The Exceptional Children’s Assistance Center (ECAC)

ECAC has grown from an all volunteer parent organization to a full service Parent Training & Information Center serving families in North Carolina with more than 25 full and part-time staff and offices throughout NC. All
services are provided at no charge to parents and families.

Family Support Network of North Carolina (FSN-NC)

FSN-NC promote and provide support for families with children who have special needs.

Family Voices of North Carolina

Family Voices of North Carolina is a “beacon” for families of CYSHCN offering support and information, including conferences, listservs, newsletters, direct one-on-one support, work shops and training, and lending library.

TelAbility

TelAbility is an innovative, community oriented, interdisciplinary program that uses telecommunications to improve the lives of children with disabilities. Using real time video-conferencing and internet technologies, TelAbility provides comprehensive, coordinated, family centered care to children with disabilities across North Carolina and offers education, training, and peer support for people who care for them.

North Dakota

Family Voices of North Dakota, Inc.

Family Voices of North Dakota Health Information and Education Center for
families who have children with special health care needs: disability, chronic
illness, physical or mental health conditions.

North Dakota Disabilities Advocacy Consortium

The Consortium is an independent group of North Dakota organizations who are interested in advocating for public policy that will benefit North Dakotans with disabilities and their families.

North Dakota Family to Family Support Network

The Family to Family Network is a support network based on the philosophy that parents who have successfully adapted to their children's disabilities or special health care needs, are the best support for other parents of
children with special needs. The Family to Family match provides emotional support and understanding, shared experiences, and support in accessing resources. It is designed to be broad based, to serve children with all
types of disabilities and special health care needs and their families, and accommodate the needs of families in rural environments.

Pathfinder / NDPASS

The Pathfinder PTI views parents as full partners in the educational process and a significant source of support and assistance to each other. The PTI's are funded by the Office of Innovation and Improvement, Office of Special Education Programs (OSEP), U.S. Department of Education, "to provide training and information to parents to enable such individuals to participate more effectively with professionals in meeting the educational needs of children with disabilities," as stated in PL 98-199. NDPASS is a Parent Information and Resource Center (PIRC) funded by US Department of Education, Office of Innovation and Improvement.

Ohio

Family Support Collaborative

The Family Support Collaborative provides information about supports and services for Ohio families who have children with Disabilities

Family Voices of Ohio

Family Voices of Ohio activities focus on assisting families to partner in decision making for their children and at the policy level.

Special Needs Resource Directory of Southwest Ohio:

The directory, developed by the Center for Infants and Children with Special Needs at Cincinnati Children's Hospital Medical Center, includes information on issues related to advocacy, assistive technology, community services, dental care, education, employment, estate and future planning, financial assistance, guardianship, home health care, mental health, MR/DD services, nutrition resources, summer programming, therapies, transition issues, transportation, and wish-granting organizations.

Oklahoma

Family Voices in Oklahoma

Family Voices is a national grassroots clearing house for information and education about ways to assure and improve health care for children with disabilities and chronic conditions.

Oklahoma Family Network

The Oklahoma Family Network is Oklahoma’s Parent-to-Parent group advocating for family-centered care for those who are raising children with special health care needs.

Oregon

Family Voices in Oregon

Family Voices of Oregon provides assistance to families and professionals as they work together to improve outcomes for CYSHCN in Oregon.

The Oregon Parent Training and Information Center (PTI)

Oregon PTI's mission is to educate and support parents, families and professionals in building partnerships that meet the needs of children and youth with disabilities. Oregon PTI provides programs and services throughout the state.

Oregon Advocacy Center

OAC is an independent non-profit organization which provides legal advocacy services for people with disabilities anywhere in Oregon. OAC is designated under federal law as the protection and advocacy system for Oregon, but
it is not a part of the state or federal government. OAC has attorneys and advocates who assist people with disabilities.

Oregon Family Support Network(OFSN)

OFSN was founded address the overwhelming need to assist families with navigating the complex maze to access resources and support at the federal, state and local community levels for children and adolescents with special needs.

Pennsylvania

Family Voices of Pennsylvania

Family Voices of Pennsylvania shares resources with families of CYSHCN through a variety of activities including one-to-one contacts with family members, focus groups, conferences and listservs.

The Mentor Parent Program, Inc

The Mentor Parent Program is a community-based parent project created in 1989 by parents of children with special needs to support, assist and provide expertise to parents in rural northwest Pennsylvania.

Parent Education & Advocacy Leadership Center

The PEAL Center serves families of children with disabilities and special health care needs. We provide information and training on education in Western and Central Pennsylvania, and on healthcare needs and support services statewide for parents and friends of children with disabilities, educators, health care and community service providers, and advocates.

Parent Education Network

PEN is Pennsylvania's statewide Parent Training and Information Center. Much of the information included in this site is designed to support Pennsylvania parents of children with special needs, but information and links are included on Federal Special Education, National Disability Issues and Resources, Special Education Legal Links, Transportation, and Travel that will also pertain to parents and individuals with disabilities in other states.

Parent to Parent

Parent to Parent of Pennsylvania is a network created by families for families of children and adults with special needs. They connect families in similar situations with one another so that they may share experiences, offer practical information and/or support.

Puerto Rico

Rhode Island

The Rhode Island Parent Information Network

The Rhode Island Parent Information Network (RIPIN) is a statewide, nonprofit agency that provides information, training, support and advocacy to parents seeking help for their children. RIPIN is the home of five projects that are made up of 11 programs and services to families with children in RI, including families of children with special needs. The five projects include Family Voices, the Early Intervention Parent Consultant Program, the Family Health Parent Consultants, the Parent Information and Resource Center and the Parent Training and Information Center.

South Carolina

Family Connection of South Carolina

Family Connection of South Carolina is a support network for families who have children with developmental delays, disabilities or chronic illnesses. As the statewide parent-to-parent organization with offices in several cities, Family Connection helps thousands of children in South Carolina reach their potential by providing parent-to-parent connections, linking families to community resources, and sponsoring a number of educational and support programs. Programs are free and confidential. As parents of children with special needs, Family Connection parents know the value of talking with another parent.

Family Voices of South Carolina

South Carolina Family Voices is a support network for families who have children with special needs, provides assistance to families and professionals through a broad system of programs and services.

Parents Reaching Out to Parents of South Carolina, Inc

Provides information and training about special education law to families of children with disabilities and special needs. Not income based.

South Dakota

South Dakota Advocacy Services

Our mission is to protect and advocate the rights of South Dakotans with disabilities through legal, administrative, and other remedies.

South Dakota Coalition for Children

The mission of South Dakota Voices for Children is to improve the lives of children through policy and program advocacy.

South Dakota Parent Connection, Inc

A Parent Training and Information Center formed by parents, educators, and services personnel to provide information and training to parents of children with disabilities or special needs throughout the state of South Dakota.

Tennessee

Family Information Notebook (FIN)

The FIN Project is an information exchange system for use among caregivers and health care, educational, faith-based, recreational and other community systems that care for a child with special health care needs.

Tennessee Disability Coalition

The Coalition is an alliance of organizations and individuals in Tennessee that have joined to promote the full and equal participation of men, women and children with disabilities in all aspects of life.

Texas

Advocacy, Inc.

Advocacy, Inc advocates for, protects, and advances the legal, human, and service rights of people with disabilities.

The Disability Policy Consortium

The Consortium is an independent group of statewide advocacy organizations that strives to achieve the development and full implementation of public policy that promotes and supports the rights, inclusion, integration, and independence of Texans with disabilities.

Family to Family Network

The Mission of Family to Family Network is to help families of children with disabilities by providing information, training, referral and support.

Family Voices of Texas

Family Voices of Texas through a collaborative network of community-based parent organizations, provides assistance to the many families across the great state of Texas.

Partners Resource Network (PRN)

PRN is the non-profit agency awarded three PTI Projects which now cover the entire state of Texas. These projects operate independently but do share some central administrative functions. All the projects share the common purpose of empowering parents of children and youth with disabilities in their roles as parents, decision makers, and advocates for their children.

Texas Parent to Parent Network

Texas Parent to Parent provides peer support, resource and referral information and advocacy.

Utah

Family Voices of Utah

Utah Family Voices provide a broad range of assistance to families and professionals. This includes individualized information and referral, focus and support groups, parent matching, training, topical calls, conferences, care notebook and resource guides, list serv, surveys, website, and a newsletter.

Utah Parent Center (UPC)

The mission of the PPC is to help parents help their children with disabilities to live included, productive lives as members of the community.

Vermont

Parent to Parent

A Family-to-Family Health Information & Education Center.

Vermont Parent Information Center

The Vermont Parent Information Center (VPIC) is a statewide network of support and information for families who have a child with special needs or disabilities, and the professionals who work with them.

Vermont Family Network

The organization provides information, support, advocacy, and promote family-centered policies and practices.

Virginia

Family Voices of Virginia

Family Voices of Virginia widely disseminates information and resources to families of CYSHCN and the providers who serve them, through meetings and workshops, conferences, direct support, and parent matching.

Parent Educational Advocacy Training Center

The Parent Educational Advocacy Training Center assists the families of children with disabilities through education, information and training.

Parent to Parent of Virginia

The premise of Parent to Parent is that veteran parents (called Parent Partners) of children with disabilities are trained and matched to provide emotional support to parents that have children just receiving a diagnosis.

Partnership for People with Disabilities

The mission of Partnership for People with Disabilities is to partner with people with disabilities and others to build communities where all people can live, learn, work and play together.

Washington

Family Voices of Washington

Family Voices of Washington provides assistance to families to help them navigate health care systems for CYSHCN in Washington.

Parent to Parent of Washington State

We provide emotional support and information to families of children with special needs and/or disabilities.

Washington PAVE

Washington PAVE is a parent directed organization that works with families, individuals with disabilities, professionals and community members in all walks of life and with all types of disabilities.

West Virginia

West Virginia Parent Training and Information (WVPTI)

WVPTI is a statewide cross disability, parent/professional, private non-profit group.

Wisconsin

Advocacy and Benefits Counseling (ABC) for Health

ABC for Health is a Wisconsin-based nonprofit public interest law firm dedicated to ensuring health care access for children and families, particularly those with special needs or who are at risk. ABC for Health's mission is to provide health care consumers with the information, advocacy tools, legal services, and expert support they need to navigate through America's complex and confusing health care financing system.

Family Voices of Wisconsin

We are a group of volunteer parents and advocates of children with disabilities and special health care needs We focus our efforts on working with our partners to support the voice of families to inform and influence public policy on behalf of children and families.

Parent to Parent of Wisconsin

Parent to Parent of Wisconsin provides the one-to-one connection for parents new to having a child with special needs, experiencing a time of stress or simply seeking support, resources and information with another parent
who has been there.

Wisconsin Family Assistance Center for Education, Training & Support, Inc. (WI FACETS) – Parent Training & Information Center

WI FACETS is a nonprofit organization serving Wisconsin children and adults with disabilities, their families and those who support them.

Wisconsin Family Ties

Wisconsin Family Ties works to create greater understanding, respectful acceptance, support in the community with families that include children and adolescents with emotional, behavioral, and mental disorders.

Wyoming

Family Voices of Wyoming

Family Voices of Wyoming helps families of CYSHCN by offering support, guidance, information and referral to those who are just learning the extent of their children’s special health care needs.

Parent Information Center of Wyoming

The main goals and purposes of PIC are to help families better understand education issues as they relate to their child's disability, and to provide support and encouragement to parents as they face their child's journey through life.