Publications & More

Below is a list of our publications sorted by topic.

• View list sorted by date.

Chartbook

• State-at-a-Glance Chartbook on Coverage and Financing of Care for Children and Youth with Special Health Care Needs (January, 2007)

Health Care Reform

• What Do Children with Special Health Care Needs Require from Health Care Reform? (July, 2009)
• Health Care Reform and Children with Special Health Care Needs: Coverage is Not Enough (July, 2009)
• Health Care Reform and the Massachusetts Commonhealth Program: An Important Foundation to Build on for Children with Disabilities
• The Essential Components of Health Care Reform for Children with Special Health Care Needs (September, 2009)
• Presentation: What do CYSHCN Require from Health Care Reform? [PDF] (October, 2009)
• Presentation: Essential Components of Health Care Reform for CSHCN [PDF] (January, 2010)

Care Coordination

• Designing Evaluation Studies of Care Coordination Outcomes for Children and Youth with Special Health Care Needs (August, 2008)

Fundamentals

• Why Health Insurance is Important to Children and Youth with Special Health Care Needs (July, 2006)
• Medicaid as a Second Language: A Slightly Irreverent Guide to Common Medicaid Terms, Acronyms and Abbreviations (March, 2007)
• Mandated Benefits: Essential to Children and Youth with Special Health Care Needs (June, 2008)
• Presentation: Health Insurance and Children with Epilepsy [PDF] (2009)
• Presentation: Health Insurance and Children with Autism Spectrum Disorders [PDF] (January, 2010)

Family Opportunity Act (FOA) and Medicaid Buy-In Programs

• Reducing Under-Insurance for Children and Youth with Special Health Care Needs through Medicaid Buy-In Programs (November, 2006)
• Frequently Asked Questions about the Family Opportunity Act's Medicaid Buy-In Option (February, 2007)
• Case Study: Buying into a Medicaid Buy-in Program: The Texas Experience (Sept. 2009)
• Estimating the Cost per Child Under the Family Opportunity Act's Medicaid Buy-in Option: An Update

Medical Debt and Family Financial Hardship

• Payer of Last Resort: Medical Debt and Financial Hardship among Families Raising Children and Youth with Special Health Care Needs (March, 2007)
• Presentation: Financial Hardship Among Families of CSHCN [PDF] (2008)
• Breaking the Link between Special Health Care Needs and Financial Hardship (February, 2009)

Paying for Additional Services

• Relief Funds: A Safety Net for Children and Youth with Special Health Care Needs (August,2007)